Those w same dx. Hpv 16 scc oropharynx unknown primary

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I’ve been asking a lot of questions on this forum and I thank you all. 

id like to communicate with those w my same diagnosis and hear your experience w treatment and outcome.  Anyone out there ?  Tyia

  • Hi. Look up  

    He has a comprehensive account of his CUP that showed up in the end. 
    Peter decided, along with his team that he would eschew RT for watch and wait. He’s a sensible bloke with a sensible head and he could get his head round that uncertainty and cope with it. In the intervening years he has had a great life travelling the world. I think he sails too. 
    How us your husband after his treatment? He has scans coming up next month, doesn’t he?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Happy to chat - just Private Message me

    Peter
    See my profile for more details of my convoluted journey
  • Yes. April 2nd is his scan I’m so nervous I pray the cancer is totally gone.  He did handle his treatment very well. I dunno if that’s actually great news.  Just because he handled it well and there were no issues what exactly does that mean for him. 

  • How do I private message you?

  • Click Peter’s name. At the top right you will see a +
    Click on that for a drop down menu. Request friendship. When Peter accepts your request you can message each other 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Just because he handled it well and there were no issues what exactly does that mean for him. 

    It means he’s done very well in getting through with no major issues and that his recovery will be easier. You don’t have to be really ill to be cured. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge