Day 15 RT

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My husband just completed day 15 of radiation treatment for hpv tonsil cancer.  He is really starting to have side effects and is trying to figure out what he can eat and what he can't .  Cheerios and milk and a smoothy so far go down pretty well.  We just saw the dr who adjusted his pain meds and he just tried the magic mouthwash for the first time.  This is all so overwhelming, but I know we will get through it.  We are staying with our daughter as she lives much closer to the cancer center.  Our other daughter and son live closeby and we have two grandchildren who give us joy when we are feeling low.  Thanks for listening!!

  • Hi welcome to our small friendly community group that none of us wanted to join. We’re always happy to help no questions too silly ask. I’m 7 years post chemo radiotherapy tonsil cancer. Am living a great life now. Hugs 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks for listening

    Hi again  

    Thanks for your update. 
    That’s another week done so your husband must be half way through. 
    A day at a time. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember

    Hi Rara

    Hubby still eating after day 15 is good going...hopefully he will be able to keep eating during the rest of his treatment...makes a huge difference to recovery...keep the forum updated with your hubby's progress.

    Take care 

    Peter

  • Hi Rara2, seems like things are going pretty well.. your husband is entering the nitty gritty stages now though, so don't be afraid to use the PEG for overnight feeds if things get tough, and just continue drinking if possible... take the meds by the clock and keep on top of the laxatives, he will not want constipation on top of everything else.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Thanks for this update Rara2 and well done to your husband in getting this far, he will start to feel the side effects kick in a bit more so its good to hear his pain meds have been increased. He could ask for food supplements if the swallowing becomes difficult as they will help him to maintain weight. It must be a big help having your family with or near to you as it will help take your mind of the treatment. Wishing you all the best for the remaing treatment and recovery, take care.

                                                                                 Chris x

    Its sometimes not easy but its worth it ! 

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  • Almost half way as he has 33 treatments total. 3 full weeks and then home to recover.

  • Thank you for your encouraging words.  It really helps!!

  • No PEG.  I am from the US, PEGS are not offered immediately.  I know all of you here say they are life savers.  I will keep you all informed.  Thanks for the support!

  • Thanks for your support!  Family is getting us through!