New lymph node on other side of neck

Hi Bridget 

I think we all become very sensative to any changes in our H&N areas when we have cancer.  Every lump and bump worries is.

You have done the right thing by contacting your team, but I suspect that the treatment has irritated your neck and that it's what you're feeling.  Fingers crossed that is what it is and you'll have an answer tomorrow when you attend RT. 

Hi Bridget. I was scanned weekly usually   a Monday whilst on the radiotherapy table the the table was finally tuned . Mention again to the team in case message hasn’t been passed across. I saw my oncologist or his registrar  weekly as well during treatment so re iterate to them. To be honest I don’t think I touched my neck during treatment as everythjng felt strange .

best wishes s for week 2

Hazel 

Thanks Peter, I really hope your suspicion is right but the worry is that it’s on the untreated side. I’ll update this post tomorrow. 

I had 75% radiotherapy on cancer side and 25% on other side ask if you are  having same? But do point the new lump out to them 

Hazel 

Thanks for the message Hazel. I was scanned last Monday, before my first treatment, but I was told that the scans in the radiation room don’t show the tumours, only bone, for the purpose of alignment. At my hospital, patients don’t see oncology until the beginning of the third week, but I have emailed the fabulous Macmillan Nurses there and I’m sure they will be on the case tomorrow. I will also mention it when I go for radiotherapy.

Best to be on the ball. Try not to worry they will be in the case tomorrow I’m sure. 

hugs 

Hazel 

I’m only having it on the left side (same side as my primary on the tonsil, and the neck metastases). Thanks to you and Peter for your kindness in replying tonight. I’m going to see if I can manage to sleep now, thankfully my appointment is early tomorrow morning so hopefully something will start to be done to either put my mind at rest, or alter treatment plan. 

Hope today how’s well

chat later hopefully

By the time I arrived for radiotherapy this morning, the radiographer had received an email from my consultant saying that the CT scan I had six weeks ago when my mask was made, didn’t show any abnormalities on that side of the neck. They’re going to leave it for a week to see if it gets either bigger or smaller, and I see the oncologists next Monday and may then possibly be booked for a biopsy and/or ultrasound. The thing that worries me most is that, on my PET scan result from October, it said that there was a “mildly avid”node on the right. Mildly avid usually means that it’s just a node that’s reacting to slight infection or something going on in the body. But as it showed up on the PET scan, I am worried that it could well have been the cancer just starting up on that side. The radiographer said that the oncologists wouldn’t want to disrupt my current treatment, and it’s likely that I would have to finish it and then have more on the other side if it was cancer, or possibly have it on both sides for the remainder of treatment, but it would depend on what they find out. I have managed to stop worrying about it now that I know it wasn’t seen on the CT scan six weeks ago, but then I get a bit anxious because a CT scan doesn’t show up everything that a PET scan does. So the saga continues……

Thanks to those who have commented on this thread, it’s so good to have the support of this forum, it’s invaluable x x

Take care

kit

xx