No Taste

Hi Jako

Everything tasted bitter from week 3 onwards so I relied on fresubin drinks throughout treatment to get the calories in as eating was just not enjoyable. 
Started to taste certain foods again week 3 post treatment although somewhat muted.  I’m now into week 8 post treatment  CRT for tonsil cancer and eating a variety of foods and can taste most of them. However, just tried cottage cheese for lunch and it tasted foul! It’s a case of trial and error but I’m pushing myself to try different flavours. Some taste as they should and some don’t. 
Hope you’re doing ok. 

Hi Jako, my husbands taste buds started slowly to come back 16wks post treatment,some of the tastes didn't match what he was eating,chicken was one of the worst flavours,it took forever to taste normal again,chocolate is another one that still doesn't taste right.Now 18mths post treatment spicy food is still a no-no. But everyone heals differently, some take longer then others. I am sure you will get some different responds on this topic. All I can suggest from my hubbies journey,persevere, persevere, persevere. It 's a "one step forward,two steps back kind of journey.All the best for the rest of your journey. Mel x

A couple of weeks into chemoradiotherapy and my taste and appetite started to go, by week 3 it was non-existent, took about four months before it started to recover...Guinness alcohol free was one of the first things I could really taste.

Its now 3 years since CRT finished and I can taste and enjoy most things.

Guiness is one of my favourite things in life haha. Not had a drink for 5 weeks now which hasn’t happened since I was about 12

Thanks. I’m doing ok. Treatment finished end of next week and at my review today I was told I’m doing great with side effects compared to most they see so I’ll take that as a win. Just missing food though 

Chicken was probably first thing during treatment that changed for me. 
Yeah I know everyone will be different I was just curious cos I’m really missing food

You still got another week of treatment till you finished,it could potentially get worse,are you able to eat solids at this stage of treatment? Lucky you. My hubby wasn't able to eat solids from week 3 into treatment. So you can imagine what he was like once he was able to eat, let alone tasting stuff. Good luck.

No I’m not eating solids. Everything is via rig. It’s the thick saliva that’s preventing it and no desire to put anything in my mouth. I’m able to drink water but that’s all I’m doing and that is reduced 

....sounds all so familiar. My hubbie had a PEG fitted prior start of treatment.and was reliant on it for about 12wks after finishing. Everything got fed through it. Can't believe it's now 18mths since finishing treatment. He is doing somewhat well,still got a dry mouth,has a caugh cause of it every now and then. And as I said, tastes are still proving. So hang in there,you will get there.