New Day New Problem

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Hi all,

so today’s issue seems to be my mouth constantly filling with thick creamy foam like saliva. This has been going on a few days but seems worse today. I have to constantly spit it out from morning to night. Just wondering if anyone else had this. 

for context I’ve 6 radiotherapy sessions left of my 30

thanks

  • Yes. I just had to spit it out. My mouth was chewing the thick saliva into a foam unconsciously. A frothy mouth is a classic sign of xerostomia  

    I used to go through rolls of kitchen roll  at night I just dropped the used tissue to the floor then collected it up into a paper bag to pop into the Rayburn  

    Its fairly normal  

    Drinking lots helps whether the intake is oral or via tube. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks. I’m getting nearly 2 litres of water in a day through tube plus feed. Just wondering if there is anything that can be given for it. How long did it last Dani?

  • If the froth then thick mucous is a real problem making you choke or nauseous then some people have been given off label Carbocysteine. 
    I can’t recall exactly how long it lasted but definitely for a good couple of months after treatment end. It just stopped practically overnight when the surviving small salivary glands stepped up. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I’ve been using the carbo stuff 3 times a day helps bring up the mucus but that’s about it 

  • It’s just patience. The foam is your thick saliva mixed up with air. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi it’s common it gues as quickly as it came to be replaced with dry mouth. I literally pulled it out with my fingers gross as it sounds. 
    I was prescribed carbusistine to thin it did it work nit really. I found soda water or flat Diet Coke rinsed round mouth helped. I was having 3 liters of liquid a day including like warm peppermint Rez in to feeding tube ti increase my uptake. 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi I had same problem but it did eventually go , spitting out constantly .. I still now have issues after eating were my tongue is coated  with a bad flavour ..so I bought a tongue scraper from amazon and I have to,say that really helps .. such a small thing I wish i had bought it earlier ,, really scrapes all the yucky saliva away , followed by a swish of bicarbonate and salt in water to clear the bad taste .. be assured it does get better with time . My mouth was so salty for months and that has thankfully gone . 
    Take care

    Helen

  • so I bought a tongue scraper from amazon and I have to,say that really helps ..

    Yes they are really good, especially the copper ones which are antibacterial

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Jako, thank you for sharing your experiences here, sorry to hear you are dealing with the thick saliva! I would echo everyone's replies, I went though the same thing. For me, it lasted for about 8 weeks, and then, suddenly stopped. I was also prescribed Carbocysteine, but ended up not taking it. I did use a rinse pretty much 3-4x a day during that time with baking soda/salt water. That seemed to keep that saliva thinned down a bit.  For reference, I had 35 radiotherapies and 2 chemotherapies. 

    Hang in there, it does get better!!! Wishing you all the best :) ~Tara