Hello All
The support in this group is invaluable. Thank you all.
I am 22 months post treatment. 33 x radiotherapy and 2x cisplatin. My diagnosis is SCC T3 N1 M0 hpv16 + right tonsil.
I am having an extraction in a couple of weeks of a tooth that is right in the radiotherapy target area. It is a tooth that the hospital missed before treatment and they have told me this. My question is what should I expect as after care treatment as preventive care to avoid ORN. should I ask for antibiotics. I have not been given any information other than a date for the extraction. If anyone has been through this please would you tell me what care you were given.
many thanks. Xx
Hi Poppy. You are having your tooth out at a dental hospital?
They should look after you. If they haven’t mentioned it ask if they have considered pentoxyphylline which is a drug that improves blood flow. It’s actually a part of the medical regime to treat ORN too.
If I remember a conversation with my oncologist correctly the chance of ORN is least in the first two years after treatment before fibrosis of the blood vessels has set in properly but do ask the hospital
I had a wisdom tooth out after RT and it was fine. Just took a little longer to heal.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Too much anxiety is created reading this stuff
never here of good stuff and there must be some
all doom and gloom
I think some of this is all scaremongering
Nobody is scaremongering. These issues are real but nobody....nobody at all....gets all these
There is plenty of upbeat news here. All you have to do is go through the updates where folk are reporting one/two/three/four/five/six/seven years not only surviving but thriving.
You are overthinking this. Firing questions and getting lots of different answers from different people because we are all different, but there is a commonality. We largely escape pretty unscathed with a few niggling long term side effects which are hugely better than dying.
You've a lot of preparation to go through then when you start your treatment you just need to lean on people to help you, trust your team if you can't trust your own body, put your head down and just do it. You'll come out the other side
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I’m probably about to break every rule of this forum….but with the greatest possible respect, and fully acknowledging that everyone is entitled to their own opinion, I have to ask what part of Dani’s ‘I had a wisdom tooth out after RT and it was fine’ or any other part of her post is gloom and doom?
I will, with apologies to other members, be presumptuous and say that I think I speak for all of us in stating that all any of us wants to do is relate our own experiences to try and help others going through the same thing. It has struck me frequently just how positive people are in the face of some pretty challenging situations and how encouraging they are to others.
Speaking personally, I have picked up a lot of very helpful information and advice through the members of this forum and really wish I had found these guys before my treatment started.
Liz
Dear Spencerbear. I am sorry you feel that way. I have taken that your comments were actually aimed at me and not Dani. My post was factual and asking for advice about something that is quite scary for me. But I didn’t put that in my post. I am just preparing myself and trying to arm myself with knowledge and questions I can ask at my appointment. I posted in the Diagnosis and treatment part of the forum. The guidance states,
I am sorry that my post upset you. But it does fit the brief.
I do wish you well and hope you get positive responses to any questions you may ask.
Too much anxiety is created reading this stuff
never here of good stuff and there must be some
all doom and gloom
You have to remember that many people come here for help, advice, to learn, to cry and to share their thoughts and worries. They get treated, they get well and we never see them again. Most people leave their cancer and this Community behind.
I've spent a little time finding these for you. Please don't be blind to stuff you don't want to see. Look past your perceived gloom
HERE HERE. HERE. HERE. HERE and HERE
Click on the links. Cheer yourself up a bit
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Spencerbear. You are overthinking this. There is being prepared and being over prepared. You will not get all the side effects and the thoughts I have found are usually much worse than the actual facts. Everyone's experience is different. Take things one day at a time, take some deep breaths and step back. In the end I found just putting my head down and getting on with it was all I could do with the help of my medical team. I had my first cancer diagnosis in 2013 at the age of 59 and here I am now aged 71 still going strong and enjoying my life and you will too.
Maybe some counselling from Macmillan might help you through this difficult time.
Best wishes
Lyn
Sophie66
never here of good stuff and there must be some
Hi Spencerbear.. the fact that we are all here giving you advice.. is 'good stuff'.. the fact that we've all been where you are and we all made it through..is 'good stuff' hearing the words 'Complete Metabolic Response' is 'good stuff'..
So, take a deep breath, listen to the advice, TRUST YOUR TEAM, and you'll get through this..
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
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