Is this a bad experience
are you asleep
Hi Spencerbear.. you are 'asleep' for the procedure... I remember being asked to swallow... next thing, I woke up, job done.....
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Did your appearance change during treatment
How did you find the peg
im in 2 minds about it
TBH.. I hated mine, but I ended up in hospital for 17 days with malnutrition, dehydration and opium induced constipation. I had to be pump fed a soya feed. How do you think I would have done without a PEG?
I would advise everyone to have a PEG or whatever because you really do not know how it will affect you... You are being treated for cancer.. getting through is your main priority..
Yes, I probably looked like cr@p at the time, but now, nearly a year later you would not even know that I went through chemoradiation.
There is light at the end of the tunnel..
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
If you are offered a PEG or a Rig, I would advise you to have it, for the few days of discomfort of having it done, will be well worth it, if eating becomes difficult during and after your treatment. I was 100% reliant on my RIG from week 3 and used it for about 10 weeks, it was my lifesaver.
I’m with the others on this: take it. I had a RIG…same sort of thing…and it quite literally saved my life. Like you I was in two minds….tbh I was horrified by the idea…but my oncologist was pretty insistent, and boy was he right.
Liz
oncologist was pretty insistent,
I didn’t have a choice. No proactive tube at Swansea but I grabbed a chance of an NG as soon as I couldn’t swallow. And that happened overnight.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Take the PEG. I never had a single moments problem with mine. Hardly noticed it being inserted nor it being removed when I no longer needed it. It was invaluable and allowed me to recover quicker than I may have done without its help in taking meds, providing nutrition and hydration.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007