Peg fitting

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Is this a bad experience

are you asleep

  • Hi Spencerbear.. you are 'asleep' for the procedure... I remember being asked to swallow... next thing, I woke up, job done..... 

    Loz (61)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Did your appearance change during treatment 

  • How did you find the peg

    im in 2 minds about it

  • TBH.. I hated mine, but I ended up in hospital for 17 days with malnutrition, dehydration and opium induced constipation. I had to be pump fed a soya feed. How do you think I would have done without a PEG?

    I would advise everyone to have a PEG or whatever because you really do not know how it will affect you... You are being treated for cancer.. getting through is your main priority.. 

    Yes, I probably looked like cr@p at the time, but now, nearly a year later you would not even know that I went through chemoradiation.

    There is light at the end of the tunnel.. 

    Loz (61)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • If you are offered a PEG or a Rig, I would advise you to have it, for the few days of discomfort of having it done, will be well worth it, if eating becomes difficult during and after your treatment. I was 100% reliant on my RIG from week 3 and used it for about 10 weeks, it was my lifesaver.  

  • I’m with the others on this: take it.  I had a RIG…same sort of thing…and it quite literally saved my life.  Like you I was in two minds….tbh I was horrified by the idea…but my oncologist was pretty insistent, and boy was he right.

    Liz

  • oncologist was pretty insistent,

    I didn’t have a choice. No proactive tube at Swansea but I grabbed a chance of an NG as soon as I couldn’t swallow. And that happened overnight. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Take the PEG.  I never had a single moments problem with mine.  Hardly noticed it being inserted nor it being removed when I no longer needed it.  It was invaluable and allowed me to recover quicker than I may have done without its help in taking meds, providing nutrition and hydration.

    Peter
    See my profile for more details of my convoluted journey
  • Agree completely, we got the PEG suggested to be fitted a week or so before my husband started treatment, as a precaution, needed it three weeks into treatment as swallowing things started to become too painful 

  • I wasn't asleep when I had mine done, but it's not that bad ,the only thing I didn't like when thay tried putting the camera down my nose it took a few time for me to swallow it ,u don't feel anything, only when it goes down your nose good luck and don't worry