Hi I am in the fortunate position to be post treatment by 5 and half months. They got the cancer in both my tonsils and I should be celebrating. Sadly I am not I returned to work at the beginning of September on phased. I started feeling really odd and poorly about 4 weeks ago. I had an appointment with the doctor who took bloods last week. The result came back my white blood cells are low so I am not fighting infection. I have a high liver marker and my thyroid is not working properly I feel really poorly and deflated.i am off work again which I am upset about. Has anyone got any experience of this or similar? The doctor said some are side effects from the radiotherapy and chemotherapy. All I want is to start to feel better. I feel so low and have no interest in food. I feel really bad asking. So sorry. JCPH
It certainly does we’ve had quite a few fledge and fly away Many kept in touch many go on their merry ways and it’s fine
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Dani what you have experienced and written is extremely profound! I admire you! Xxx I never thought the way I was feeling was self pity. Ooh no that's not good! I need to kick myself up the bum! I still feel sad for the ladies who have not been so lucky I can't get how their families are coping without them and it breaks my heart. But your last comment hit a chord! You are right. I need to sort myself out! Xxx Jackie
You are right. I need to sort myself out!
Deep breath, this is your journey and you need strength to get through it but you will. Sometimes you need to kick yourself up the bum, yes. Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Jackie....Lots of us have low days, even many months/years after cancer treatment, some need counselling or meds to help battle the issue...regrettably some are even told by family and 'friends' to 'man up'...certainly unhelpful and causes further damage...contact your CNS and dietitian with your concerns.....
or www.macmillan.org.uk/.../depression
Take care
Peter
Thank you for writing this. I’m almost a year post treatment and I too have low days especially when I’m getting close to my next hospital appointment. I’ve always been quite anxious so worrying about what might happen in the future is quite usual for me. However, I had a change of mindset just yesterday. I don’t know what tomorrow will bring but today I’m fine and I’m going to enjoy it. It’s a big step for me. I hope you can get to enjoy each day again.
regrettably some are even told by family and 'friends' to 'man up'.
Spot on....that's nigh on useless but it's perfectly acceptable and a good thing even to say it to yourself
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you Peter! You are so right in what you say. And I will you take care too. Jackie
Hello manor it takes a lot to write what you have! I am so pleased you were fine. Long may it continue! We are all in this together. Dani has made me think hard about my mindset. I like you had a good day yesterday at work and celebrating my twin grandchildrens 7th birthday. Life is for living and I am going to do my best to enjoy it! Good luck x Jackie x
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