how soon for scans

Hi it’s early days as well it could be the opiates alongside radiation  fatigue I had that it is like running a marathon  and hitting the wall best advise I got was don’t fight it listen to your body for around a year I took daily 20 min power naps. I went to bed when my body told me to that meant I coukd carry in with the rest if my day. If I tried to fight it it was worse. Make sur she’s getting enough caloiries for me it was 2500 calories every day our metabolism change s for a good year or so. 
Bit yes contact his cns or reassure yourselves. 
Hazel x

thanks hazel , i spoke to the cn this morning and she pretty much said the same . he is lethargic and no energy in the day then at night keeps waking up wide awake and he gets up for abit then back to bed  then ends up having a hour in the day ...which i dont suppose is helping at all..someone is ringing from the doctors at 5pm ..as i asked about a mild sleeping tablet just to use a few nights to let him get some proper sleep ,so i,ll see what she says .cancer nurse said she could not give sleeping tablets ,need to see doctor for that

i have just filled in a profile for him ..hope i have done it in the right place.

my partner was diagnosed with P16 positive squamous cell carcinoma of base of tongueT4N1MX and had 6 weeks of  rt 2 sessions of chemo..came through it pretty well and was getting better until 4 to 5 weeks after treatment when he started having acute pain from earache /headache ..he had his ct scan at 12 weeks and they have come back and said he needs pet scan as there are still some areas that need further evaluation ..that is on this thursday 25th july .

his earache /headaches are not as bad now but he is having bad nights as he cannot get comfortable.

not much energy still and although he had started to eat abit after treatment (just weetabix /soup) he is now fully reliant on the rig again as eating brings on the headache. just to bring everything up to date

Thanks for the update. I know it's a worry but failure so early is pretty rare.

I had a PET at 16 weeks that showed a hotspot. It was biopsied and no cancer was found. Hopefully it will be the same for your partner

PS

debs5853 said:

i have just filled in a profile for him ..hope i have done it in the right place

Perfect

thanks Dani,trying to keep a positive mindset

wanted to ask is caphosol the same as biotene? i got him biotene which actually does help but keep reading about caphosol

I believe they are 2 similar things although caphosol may be more "medicated".  I have Biotine gel for dry mouth.  Basically it is glycerine with an artificial sweetener in it.  I have figured out that it works (for me) by coating the lining of the mouth and delaying it drying out (and when it is dry it is very painful).  It does not encourage saliva production in my case.

As to the ear/headache.  Remember that many of the nerves in that part of the body interact with each other.  I found surgery on my throat and more recently RT my ulcers in my mouth often led to earache although there was nothing wrong with my ears.  That may be the the case for your partner.  Let us hope so.

thanks peter , he does like the biotene mouthwash and finds it helps him.he has also  tried gelclair and says it does,nt work for him ..its just trial and error is,nt it ,finding what helps

debs5853 said:

wanted to ask is caphosol the same as biotene? i got him biotene which actually does help but keep reading about caphosol

They are both types of artificial saliva. Caphosol is a solution of calcium phosphate that helps restore the proper pH balance of the mouth, thereby protecting  the sensitive tissues

Biotene is a medicated mouthwash that has the same effect. It's available as a mouthwash which I found very soothing.

Caphosol is much more expensive 

thanks Dani, he has the biotene and find it helps but i wondered if the other was better for ulcers ,but we may as well stay with biotene then .the doctors has added it onto his precription