Maxillectomy

Take a deep breath and start again. This may seem a devastating diagnosis but you can cope and build a good life. I shall tag Lyn who has had a similar operation. She lives in Australia and might still be about but I’m sure she will get back to you later. 
Sophie66 

Cocoz said:

feel like my life’s been cut short and can’t see a way out. 

With luck it hasn’t so take this day by day. It’s the only way to cope with an overwhelming situation. Do you have a Maggie’s near you. They provide wonderful support if you can get there, even a chat over a cup of tea can help. Do you have family support? Getting a carer to join us here might be a good idea too. 
Stay with us. We will help as much as we can. 

Thank you 

Thank you.  Don’t know about maggies.

It would help if I could speak to someone has been through it as don’t know anyone.   Even though my surgeon is great it’s all a bit matter of fact as they deal with cancer day in day out. 

 Cocoz  There are some threads here if that might help. You could post in a recent one and somebody should pick up 

https://community.macmillan.org.uk/search?q=Maxillectomy#serpq=Maxillectomy

Are you having a bone graft? 

Oh and where are you? What hospital? I’ll find the nearest Maggie’s for you 

Thank you.   My surgeon did mention bone graft and then my OMFS said no as can live without four back teeth and that would mean taking bone from my leg.  Thinking maybe could have a bridge to hide gap - not convinced about bone graft with everything else going on !! 

You are so kind.   I’m in Worcestershire. 

That’s good you don’t need a graft. Have a word with your CNS about recovery. They are usually a great help while surgeons don’t seem to have the time or maybe even inclination. The tracheostomy will be temporary while the swelling post op goes down so try not to worry too much. 
There is a Maggie’s in Cheltenham. Have a look at their website 

https://www.maggies.org/our-centres/maggies-cheltenham/

Hi welcome from me to the club none of us want to join. Can’t add to Dani’s wonderful comments. Keep off dr Google stay with us in here. There still a good life to be had at the moment you're in the denial why me stage. Everythjng seems overwhelming, it’s is m but take it one day at a time. Hopefully yiuve a good cns or MacMillan nurse they are there to help. 
Hugs

Hazl