Starting Chemo , what to expect ?

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Hi I’m being started on chemo tomorrow, a week late because of infection around RIG. Oncologist has seen it and assures me I’m not at greater risk. I am nervous, because of things I’ve read about chemo and infection but I do trust the medical team. I get nervous at every new step but I’m progressing through. I guess this an an important step so here I go Pray tone1

  • You’ll be fine. Take something to do as it’s a long day. A tablet, phone/music long charger and headphones. A light blanket to wrap yourself in is useful. Something to eat while you can too

    Youll be given steroid tablets and antisickness. I think a lot if people are told to take the antisickness if you feel nauseous for the first three days or so but experience with other folk seems to indicate that if you take them anyway ( like pain relief in front of pain) you might avoid being sick entirely. 
    How many are you having? 
    Good luck 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Good evening Zenkodo, i agree with Dani you will be ok with the chemo, i had 3 doses of cisplatin and to be honest i did not suffer that badly and was not sick during my treatment but you might feel fatigued as it can affect your blood cells as it did with me. So please let your body rest whenever possible not overdo things and eat plenty of high-calorie foods if you are allowed. I used to take crossword books with me and my tablet/phone as it can be a long day. You will be in safe hands and well looked after by the nurses, I wish you all the best for your treatment, take care.

                                                                           Chris 

    Its sometimes not easy but its worth it ! 

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  • Hi I found that taking  the anti sickness medication as directed along with steroids held nausea at bay. Of course we  are all different if the anti  sickness meds don’t help please tell the team there’s others you can take we are all started in the cheapest ones. My chemos  were long day's I took plenty to read snd occupy me along with a few snacks and drinks. Are you having radiotherapy same day ? If so yiyr mask may feel tight purely because of the volume of saline we have pumped in. If you’ve narrow or deep  veins a pair of gloves kept on in hospital while you’re waiting fir cannula to be inserted can help keep warm. 
    don’t fear the chemo you’ll be fine. There’s often in with you I found headphones helped as well when you want  to be quiet. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks Dani, was going to be six chemo but deferred due to infection and there are now 5 on my schedule.As usual you’ve given me some good tips there. I hope I remember my charger ! Grinning

  • Thanks Chris, I’m having Cisplatin too. I’ve managed to cut down all work activity so I’m well prepared for fatigue!. It’s nice to hear you both think I will be ok - chemo is totally new to me. 
    I have someone who’s keen to visit but I haven’t asked whether that’s possible yet.  My 5 chemos are scheduled for each Monday of my five remaining weeks. Thanks for responding Thumbsup tone2

    Steve 

  • Thanks Raz (love your name!) my RT is first, then on to chemo. I font think I’ve got any gloves, so I’ll just see how I get on. I forgot to ask if I can have someone visit but I’ll take podcasts and books etc. thanks for responding - I don’t feel so alone with it now. 
    Steve aka Zenkodo

  • Hi Steve. Re visitors presume you mean at home. All I will say is ne careful there’s lots of winter bugs around. A nasty cold ended up with pneumonia for our daughter she’s fine now but she never gets ill. Maybe you can face time the people instead. Or at least ask everyone to wear masks and kerp your distance. 

    good luck today 

    Raz came from the step grandkids that’s what they called me when they were younger. It just went with radioactive !! 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • You are welcome Steve, Im sure it will be okay for people to visit as sometimes it is nice to have others around to chat with as it all helps with recovery but as Hazel said be careful of any bugs, etc that are around this time of year. My first operation was in November so my treatment was at the same time as yours i remember the snowy and frosty days. Never feel alone as someone on here will be around to help you with any issues you might have, hope you have a good Christmas. Take care.

                                                                      Chris  

    Its sometimes not easy but its worth it ! 

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  • Thanks Chris, I hadn’t thought the visitors thing through, I’ve been so blinkered by my own worries about sepsis from my RIG that I was forgetting that a minor cold could cause me problems. 

    steve 

  • I’ve just read your story Chris - it’s amazing and inspiring. Thank you for responding Pray tone1

    Steve