Time between diagnosis and treatment

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How long is normal here to wait between diagnosis and treatment? Aware it’s a very individual question but we fount out my husband had cancer 2 weeks ago, metastatic SCC. We’ve since had another biopsy, CAT PET scan and MRI. The doctor seemed to think it was pretty aggressive but we’ve had no indication of when we might get a treatment plan etc. is this pretty normal?

  • It was 5 months between my diagnosis and treatment start date. But from what I can gather on this forum that was a long time. In hindsight I would chase more often as it seems that the more you chase the more attention you get. I’ve found that to be the case when I’ve been chasing for follow up tests. 
    Good luck 

  • Hi Sorry to hear of your husbands predicament.  This forum is amazing for support. I had tonsil  cancer earlier  in  the year. I had biopsy on 3rd Feb then had my first op on 18th March  ,neck dissection  then week later had robotic  surgery.  Had all the scans and appointments before gand and it all felt like it happened really quickly. 

    Good luck.

  • Good morning,so sorry to hear about your husbands diagnosis. As a fellow wife I feel for you guys. For us it all started with finding a lump on the left side on his neck,eventually getting a referel to ENT. From then being told that my husband had throat cancer (T4N3M0) last year at the beginning of November,our treatment started very quickly After having MRIs, pet scans,biopsy,mask fitting, etc ,we started treatment, at the end of the same  month. Reading people stories, i wonder wether it depends on the Trust that looks after you. I think we were lucky in a way as our consultant treated our case as a priority and put a rush on the treatment.. My husband is now nearly a year post treatment and doing well, also he's got some niggling side effects to live with, which are common. Stay strong,positive and patient. It's a long way to recovery but it's worth it. I couldn't think about the alternative.  Hugs and love fellow wife Mel. X

  • Thank you - what are the main side effects if you don’t mind me asking?

    he’s barely sleeping now and we just want to feel like we are doing something!

  • Hi Rose, in 2017 I was diagnosed in early July had my tonsils out in mid-August and my treatment started at the beginning of October, so it was nearly 3 months for me. It does seem as if nothing is being done however, with all the testing and waiting for the results, then they have to have the planning meeting to discuss the best treatment to offer. There is a lot going on although as the patient and the carer, you don't see the background work, but they are getting everything together and planning for his treatment, they will call you in when the time is right.

    Ray.