Just been diagnosed

Wonderful ️️

Hi that’s the reason why I write my blog it was the only thing I has a control freak had sone modicum of control over. Now it’s helping many others lije Dani’s us. 
Hazek x

Hi. I didn't get the grading on size that everyone quotes. I was just told it was curable. When I had an initial scope it was just a small, angry red little thing. Next time I saw it was on the PET scan and it had crossed the midline of my tongue which was very scary, and triggered the 'Induction Chemo'. It responded very well to that, I lost all my symptoms after the first dose. Prior to that, I couldn't see it, but I could feel it like a roughness at the top of my throat, all the time. I'm sure your team & Consultant know exactly what they are doing but I know it can be very hard not to worry. Just try real hard, Tina x

So sorry to hear what you and your family are going through.

  My husband was recently diagnosed in July different situation to yours.  Tounge and lymph node cancer.  Like the others have said everybody is unique and diagnosis and treatmant plans are individualised.  
I can relate to the overwhelming, panic feeling after diagnosis.  My husband struggled and myself.  That’s why I joined this group.  I felt desperate for advice and support, so I could support my husband more.  
You are in the right place, this is a safe place where you can express how you’re feeling without holding back.  There is some amazing warriors on here that have lived through this they will help, support and guide you, with sincere honest words.   Like they did me, helped me to re focus, restoring my hope.  

You’re in the right place, well done for reaching out.  Sending hugs to you and your family. 

Hello, just popping up to say mine was T4, treated with 6 weeks chemo & radiotherapy late last year and I'm fine now, touch wood.  Agree with what others on here have said, trust your team but don't be afraid to question them and ask for what you need. You can & will get through this!  Sending love

Catriona

 Draper  dont worry about t2 vs t3, fact is all head and neck cancers which are confined to head and neck are treatable and curable. Focus on that. Focus on treatment, recovery and getting well first. If you really want to worry about recurrence you can do that when you are fit and well, not now. 

Hiya.

I got diagnosis fir tumour on vocal chords, I've been told 6 weeks before I even get started on treatment, am paranoid as I keep thinking what if it spreads..I dont feel.like I have much confidence  in my clinic team.

Am not seeing oncologist doctor  fir another 2 weeks, then I have to see dentist , get PEG fitted and mask before I start..I have heard that they have 31 days from diagnosis to treatment...its dead scary..

Mine was 8 weeks. Some sooner some later. Your team will be working at full tilt given the constraints it is faced with

Try not to worry about spread. You’ve likely had your cancer longer than you realise already. The radiologists know what they are doing. They make allowances for tumour growth. 

Alicent said:

Am not seeing oncologist doctor  fir another 2 weeks,

I saw mine at the beginning to sign treatment consent plans. His registrar half way through treatment then him six weeks after. There’s not much an oncologist can do one your treatment is written up. After that you are in the hands of the radiographers and nursing team. Your oncologists skills lie elsewhere. You’re in good hands. They do this every day and are good at it. 

Hi Alicent try not worry i was  63 days which was the nhs timescale from diagnosis to treatment starting. As for oncologist I saw mine twice before treatment started but that took 3   weeks after my diagnosis, during treatment I saw him week 1 he then he went t in holiday so saw his registrar when I needed ng tube in between it’s the radiotherapy bream and nurses who are yiur daily point if contact. People will be working behind the science as our plans are all tailored to our particular needs. 

Hazel