Just been diagnosed

Hello petlamb , what size and level was your diagnosis on . To me my mass looks quite big I can see it when I press down my tongue . Early days it did look ulcerated but since biopsy it looks less ulcer and more pink like bubbles . I was upset to find out it wasn't caught early and they said it was t3 but based on 5 week old ct scan . Side of my tongue has been sore on same side of lump since a week after biopsy was done and that was 4 weeks ago so getting worried its spreading . Treatment dosent start for another 4 -6 weeks 

Hi Draper best advise stop looking it’s will be a mess as you’ve had a biopsy. Trust the treatment it’s gold standard protocol chemo  radiotherapy. Remember positive HPV tumours have an excellent response to treatment. Once treatment starts you’ll realise why it works the treatment is hard but it needs to be to get rid of cancer. There’s lots on here who have come through it and out the other side. I was 63 days from diagnosis to treatment starting. My lump in neck had been there a good  3 month before I did anything about it. Try to stop worrying. 
Hazel xx

Thanks Hazel,  just keep going over in my head the consultant saying t3 , a lot of people are t2 and that's what scares me . I read t1 & 2 are low Risk of reoccurrence and t3 and 4 chances are higher for coming back . Just no come across many who are t3 that haven't had reoccurrence 

Draper said:

Just no come across many who are t3 that haven't had reoccurrence 

Where are you looking? Most people who get throat cancer have treatment, recover and get on with their lives. Very few bother with social media and communities like this one. You are not going to get any meaningful information. 
I can read the desperation and panic in your posts but please please trust your team. They do this every day and they are good at it. There is absolutely nothing you can change about the past and you can’t predict the future. Your job now is keeping well and keeping your head together. It’s your team’s job to cure you. 
Let them and concentrate on yourself not on dubious inaccurate and out of date statistics. You are unique. You are not anybody else who’s trodden the same path. Xx

Thankyou dani I will , like you say I am me and everyone is unique , like you say you can tell there's desperation and panic in me and I need to trust the professionals and let them do their job . I know Hazel said that our cancer is different and staging is different from normal cancer staging . It's just the sizing and where it's spread to that determines our type of staging and I shouldn't be panicked by that . I guess I'm used to being in control and for once in my life I'm not . And I think by gathering all the information and statistics of other people I've weighing up my own odds and I just need to relax and let things just go ahead and see  x

Hi Draoer yiu will drive yourself crazy concentrate on you. t3 is  unique ti head and neck cancers do not google. Both Dani and I have friends from here who were t3 and t4 happily living their lives. Look at me t 2 but 7 lymph nodes woukd have probably made me t3   Our cancers spread to where they shoujd be whuch is lymph nodes. Figures online at best are 5 years out of date and at worst inaccurate. Trust your team. Please. 
Hazel xx

Draper said:

I just need to relax and let things just go ahead and see  x

Get in touch with Macmillan for free counselling. It might smooth things out for you. Lots of people here have found it really helpful. Give it a go. 
www.macmillan.org.uk/.../bupa-counselling-and-emotional-well-being-support

I will , think 1st couple of days I'm going to have doubt and fear , I just need to calm down and accept what's ahead and start getting a pma and let the professionals deal with me 

I'm waiting to speak to a Councillor, I think speaking to people and getting my fears out will sort things out and I can get my head straight and focus 

Draper said:

I guess I'm used to being in control and for once in my life I'm not .

Exactly why I wrote my blog. Now that WAS under my control