Neck disection

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Hi has anyone had any permanent damage to shoulder and neck after a neck disection, it is now 18 months since surgery, they took 23 lymph nodes away of which 13 were cancerous, also sacrificed my spinal accessory nerve and my internal jugular vein, I had a lot of sessions with physio with my loss of shoulder movement and lots of pain, I have recently been told I am not able to go back to my place of work due to the wasting of muscle and nerve damage in neck and arm

i did leave a note here last year and had lots of reply’s for that I am grateful, just wondering if there are others out there with permanent damage 

  • Hi our expert on neck dissection is Peter  I’ve tried to tag him but system not allowing me hopefully he will pop on 

    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I have permanent damage GF1 following a dissection very nearly ten years ago now, I too had accessory nerve and jugular sacrificed. Today, other than a lowered shoulder and very occasional mild pain, it just is what it is...I've adapted to the limited movement and strength and don't really give it a second thought.

    By a twist of fate my "strong" left shoulder has been virtually useless since February (horribly fractured and dislocated) so my weak arm is, for now at least, the stronger one. 

    So yes I have permanent damage but it doesn't bother me at all, it's normal.

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi GF1, Hazel mentioned me.  I did not have significant permanent damage, although you had more taken away than I did with the nerve and vein on top of the lymphs.  They disturbed my accessory nerve and it took around 18 months to get back to as near normal as it was going to get.  In reality I have adjusted to any deficiencies and they don't feel like they limit me now.

    It sounds like you are one of the unfortunate patients at the worse end of the side effects scale.  I am sorry the hear that you are likely to lose your current role.  Hopefully your employer can find something that will enable you to fulfil your potential in an alternative way.

    Peter
    See my profile for more details of my convoluted journey
  • Thank you for your reply Peter