More info on my treatment

So brave. I was on tranquillisers for the first week with the mask.  Soon got used to it but it makes me wonder how I did it.  I have a RIG tube, it's been my lifeline, still can't eat.  Lots going on this month, I get my first 12 week results on Wednesday, very anxious.  Be glad when Jan is over.  Good luck with everything.

Pauline

Well done Lillian,

An MRI with a mask on must be challenging, something I was spared. I had my mask made in the simulation room, had my planning scan done straight away and waited for a slot. You'll do it. Have you asked them to cut eyeholes in it? That makes it much more bearable. I spent my treatment times watching the machine go round me and the beam shape change as it did its job....fascinating.

Best foot forward. It will be done before you know it

Thank you so much Pauline, good luck for your results, I didn’t realise you had to wait so long to get them. It is a really scary journey that we are on and some people tend to think that once you’ve had your treatment then that’s it, but from what people have been telling me that is definitely not the case.  
Take care Lillian 

Hi Lillian Youve come this far you can do it. i used to like Dani watch the leaves on the machine whirl round. Plus i used to visualise nice walks or bike rides. Yoga breathing helps breathe in hold for a count of 5 breathe out slowly .Let us know how you get on

hugs Hazelx  

Thank you Hazel for your support you are all helping  me on this journey and I really appreciate it I am sure I will cope tomorrow somehow and it is good to know that people are are there for me 

Lillian

Like you I also get my 12 week results end of January. I also can’t eat which I’m struggling with. How are you coping with not being able to eat? 

Good evening Lillian, i know it was quite a few years ago when i had my scans and treatment but can i ask why you have to wear your mask when having the scans done? I never had any issues with the scans i just lay there as nothing can harm you and you are in full control and being watched all the time and you can communicate with the operators. Its good news you are also having a PEG fitted as it will help you if your swallowing becomes difficult. Good luck with your scan and your planned treatment, take care. 

                                                                         Chris x 

MRI guided RT gives more accurate targeting. Maybe organ's at risk are more critical? Just a guess?

I don't know what centres have MRI linacs

Hi Lillian

I was treated in the same hospital as dani so had the same fitting and simulation as her all done on the same day so didnt need an mri.

Good luck you will sail through it i know its daunting all these different things but once you get going you will be fine and  good thing is if you have any questions just ask away on here there is always someone to give you an answer thats whats so good about this site.

Simular with the peg dont worry they will look after you ive had mine for a long time and it will serve you well in the coming months mine was a godsend towards the end of treatment makes life so much easier.

Good luck on friday any questions feel free to ask 

Chris

Hi Chris I think they may have changed things somewhat, not sure but now you even get a cast made of the back of your head as well as the mask. All to make sure you get it spot on I suppose, the ct scan I had on Monday wearing my mask and the MRI I am having tomorrow with the mask on is to pin point exactly where the radiotherapy needs to be given. I suppose they change things all the time. 
I did have some scans before I had my mask made as well. I hope you are feeling better now your treatment is finished, take care 

Lillian