When ur down and pukey
and you need some love and care
and nothing, nothing is staying down
Bloody hell I have a warped sense of humour. First chemo was Monday and I think it’s Thursday night. Cisplatin stuff. Was doing no too bad until I got home — no poops for a day or so so just feel like crap. Finally managed last night so this is good but everything is burpy and headaches and sore — I’m sleeping sitting up because when I lie down the stomach hurts and I keep running to the bathroom to puke or burp up fluids stuff.
I’m managing g to eat — tiny bits — lots and lots of tiny bits. I canny play video games though — minecraft moves too fast and makes me nauseous. I canny watch tv — pictures move too fast and same. Even reading at times sets the headache-pukey thing off. So folks ask me questions — like friends and stuff online — and I’m losing the ability to nicely answer. I know they mean no harm etc — just I’m sore, pukey and I guess cranky.
I was told the first two weeks weren’t bad — and now I’m scared shitless of what’s coming next.
Ruth
Ruth, are you having chemo every week?
If the antiemetics aren't working tell your team. We all seem to get started on the cheaper options; no reason not to, I suppose.
There is a huge armoury of drugs used after chemo. I'm sure there will be one to suit but you must let them know.
The good news is that these symptoms subside after a few days. The two week thing refers to RT. You're fairly OK for those first two weeks, then your throat gets scratchy then it gets sore. As far as pain goes most of us seem to plateau at around the end of week four. I think that's probably because we have our pain relief pretty well organised properly.
Hang on in there, you'll do it. It's eight to nine weeks of rubbish then you start very slowly getting better
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
