Hello
Everyone
I have a diagnosis of Squamous cell carcinoma of left tonsil, P16 positive, T2 NT M0. I am into my fourth week of proton therapy. I have grade 3 mucositis and eating soft food is becoming excruciating. Also had a recent spike in temperature of 38.7 resulting in admission for screening for sepsis. I was concluded that infection was present, thrush and possible throat infection with prescription of two types of antibiotics. I am on morphine solution and paracetamol and have been commenced on fentanyl patches two days ago with some notable improvements. Weight loss continues and think I have lost another 2kg this week. I am planning to see key worker tomorrow and explain that even soft foods, soups and things like this are hard to get down with high levels of stinging and burning pain.
I know there is a lot of people out there with immense knowledge and experience and was curious to know at what point is it to consider have a gastric nasal tube fitted. Are there advantages of persevering for a little while longer to give infection to clear and the fentanyl to kick. Your views will be kindly appreciated.
Much Thanks Shaun
Slowly does it Shaun, your consultant is right in saying the discomfort will increase, good luck with the Fortisips as they are not the best-tasting drinks but will help you put the weight back on, i take Ensure compact which is very similar. Take care.
Chris
Its sometimes not easy but its worth it !
