When head and neck cancer returns after major surgery and extensive radiotherapy...

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My husband's cancer has sadly returned despite major surgery and extensive radiotherapy this year. The team are exploring options for further treatment including immunotherapy if suitable or possible chemotherapy but have said survival is expected at between months and a small number of years. How do we go on with this diagnosis? It is so difficult to remain very positive..

  • I am so sorry to hear this Gingernut. I remember when you first posted earlier this year. After all we go through to hear that it hasn’t worked is soul destroying. 

    I know it’s emotionally devastating but you have to be practical too and look after yourself. 
    I would ask the consultant if your husband is eligible for any trials. I know the Marsden is running trials with Liverpool? Into immunotherapy and a therapeutic vaccine as an example. 
    Macmillan have a group for people supporting somebody with incurable cancer. You might find that useful too

    https://community.macmillan.org.uk/cancer_experiences/supporting-someone-with-incurable-cancer-forum

     I wish I could be more helpful so I’ll send you a hug at least 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you for this touched you remembered us and yes it is

    I'm taking all the hugs I can get ...

    It's harder in so many ways this time round

    Best Wishes to you x

  • Hi can’t add to Danis post but here’s a hug from me as well.

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Good evening Gingernut, so sorry to hear this news, I know what it's like when cancer returns thankfully I was given the option of further surgery. It's great to hear his team are looking for other options as I know there are new treatment/trials happening all the time so fingers crossed for you and your husband. Wishing you all the best, take care.

                                                                                                                      Hugs Chris xx

    Its sometimes not easy but its worth it ! 

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  • Thank you Chris and all the very best to you too 

  • I am so sorry to hear the news.  After everything this really must hurt.  I and my wife totally understand what you are going through as mine "returned" after 15 months.  However, I am fortunate and am in a good place.  All I can say is wishing you all the best and as much luck with the treatment as you can possibly have.

    Peter
    See my profile for more details of my convoluted journey
  • Thank you Peter for your kind words it’s such a lonely place to be right now and all the support does help and is appreciated.

    All the best to you and your wife for the future.

  • Hello PFJTHS Really sorry to post so long after this original post. How did they find out your cancer had returned and what symptoms did you have. Thank you

  • Hi Mandrew. I see this is you’re first post so I can at least say Hi and welcome. 
    it might be useful if you could let us know  little more about yourself so that we can help you better. 
    Peter’s case is unusual. His primary cancer has never really been found or should I say found then lost 

    If you click on his name it will take you to his profile where there is a description of his journey so far. 
    Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge