Neck stiffness, pressure in head

Hi All.

Jumping on here as I can't find what I am looking for. Yoga link looks good, will look into. There were a couple of people who mentioned other exercises, but I can't find them. Basically, I am 2 1/2 post treatment and struggling with how to rebuild lost muscle in my arms (but worse still) in my legs. Some days are goodish but others I have to haul myself up 6 steps. I childmind toddlers so time is very limited. I was just after 1 exercise for legs and 1 for biceps that I can do in 5 minutes each day at home. I had a home video sent to me but it was more aerobic based (Paracise). Does anyone have any link they can point me in the direction of? Thank you. Tricia

Could you ask for a physio ?? 

Update

feeling better, i was anaemic and unable to eat much at all due to nausea. I think i wasn’t getting enough nutrition. 
to cut a long story short, i stopped zomorph and gabapentin, started anti sickness pills and iron and can now function better. Just got oramorph for pain and still needing it at week 13 post radiotherapy which seems odd. 
now waiting for mri as new symptom of a twitch/spasm in my legs when i move my head (i had perineural invasion on histology after my surgery so hears hoping it hasn’t returned (unfortunately Adenoid cystic seems to recur of what ive read but seems a bit early to me, hope its nothing much) x

Elaine

Hi Elaine,

I’ve been forking out to see a specialist lymphoedema nurse. She believes my lack of hearing is due to fluid around the ear so is working on massaging that away. It does clear while she is doing it. 

Oh dear, shouldn’t have to pay? You in the UK? 
i had a hearing test yesterday as been deaf and constant tinnitus for 6 months. Just waiting for results to see what they’re going to do next xx

Hi Elaine. Good to hear from you, some do need oramorph longer when time is right do a phased withdrawal from it. Let us know Hiw scan goes. 
Fingers x 

Hazel x

Hi Elaine 

Its a long time since i came on here.  But reading this made a connection with me.  I have bloods being done tomorrow to check thyroid and iron . Past few weeks  i feel exhausted, legs barely hold me up , hands are stiff to move and shaky ., i am totally drained and unable to do anything. I am 10 weeks post RT . Still unable to eat , some trismus , lymphoedema,  only just managing fluids.  How quick did iron supplements take to work for you?  , for me in the past , boosting iron took months and i dread the thought of feeling like this for much longer

Hi there.  I was deaf as a post for 5/6 months.  It cleared on its own. It was all the swelling/fluid from rt.  all the best.  Lizzie

Hey jo

awful isnt it. Sorry to hear your feeling awful. Get your bt done yes but it’s probably a combination of things causing it. For me it was too much strong drugs, anaemia, poor nutrition and ive lost 2 stone in weight, 7 st 9lb now. 
im on iron and lots better but i think the nutrition side of it is a huge factor. Do you still have a ng or peg?? Whats your weight like? Of course the radiotherapy side effects will still be affecting you. You said you’re managing fluids. Have you got fortispis?? Xx

Hi there

ive had this now for 8 months, hapened 1 month post op, then radiotherapy on top. Finally in to see ENT September (as im under maxfax). Ive prayed it will improve and hasnt. Its the constant tinnitus and pressure i struggle with, sort of got used to the deafness xx