Hi
im 9 weeks post radiotherapy to palate and neck. Had neck dissection December.
is it usual to be so stiff!! My neck hurts pretty much all the time on any movement and i can feel it crunching when i move my neck and head. My head feels full like a pressure cooker !! Im deaf with terribly loud tinnitus in one ear. Its so debilitating. My head feel likes like it’s throbbing and doesn’t help because i can hear my heart bear in my ear. Is this usual and will it get better? So tired still and feel weak and wobbly. I feel like im getting worse not better. Anyone else experience this?
thanks x
Good advice Hazel
i hope i can get it all out without blubbing. Things is, then they say, oh your depressed!! Im just frustrated and feel unwell and need some help. Xx
Write it all down. 2 copies. One to whoever you are seeing. Good luck
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Elaine even now 4 years on I do a list in duplicate snd hand one over so consultant had a copy. My oncologist holds his hand out for his copy ! He appreciates it then-we go through point by point admittedly now it’s rarely more than 2-3 points.
iT stops the blubbering even in my very first consult I did the same.
you need someone to listen. Do you by chance have a Maggie s near you they are very good.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 5 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
Its a good idea, lets hope my specialist is as good as yours.
im near Lincoln and closest is Nottingham so not really x
Hi Elaine care you at Queens ? I’m not too far from you we’re 20 min from Doncaster so not too far down the road.
Yes I’m lucky with mine the oncologist is brilliant we still keep in touch once a year. My ent consultant s are good as well.
Fingers x for Tuesday
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 5 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
I had my op at QMC so under a surgeon from there but had radiotherapy under oncologist at Lincoln x
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