I received radiotherapy to the larynx 33 times with concurrent 6 cycles of cisplatin. Needed a tracheotomy, still got it because of internal lymph swelling. Anyone with similar experience?
Hi Gilpat. Welcome to the forum. There are a couple of people on this forum that have long term tracheotomies so I hope they reply to you soon. I have not had the same cancer as you as mine was jaw cancer. However I have had 2 maxillectomies over time and each time had a temporary tracheotomy. The hardest part I found was not being able to talk so had to get good at making signs and relying on pen and paper. I only had them in while in hospital unlike you.
What do your medical team say in relation to the length of time you may need the tracheotomy?
