Newly Diagnosed - Muco Epidermoid Carcinoma

They haven’t ruled it out but I’m keeping my fingers crossed :) thanks for replying. 

theres a couple of things I don’t understand and not sure if you could help me? Before I speak to my macmillian nurse when I see her. I know I have to attended for 5 years but when do you hear an all clear result, I was under the impression it could be after surgery / radio but I hear I could be wrong. Sorry for sounding niaeve but I haven’t really been around C. My grandparent had it but it was too late for treatment x

That will be a great result if you can avoid radiotherapy.  Hoping the surgery goes well.

Thank you Peter :) .. my 6 old will think the house has gone silent after the surgery lol. Take care x

This is great news that it has not spread, good luck with the upcoming surgery and hoping they manage to remove any stray cells so no further treatment is required, wishing you all the best,take care.

                                                                              Chrisx

Thank you so much Chris, I think this chat is so good to keep in touch with people how have either gone through similar or going through similar. Hope everything is ok with you x

Hi When I had my pet Ct scan 17 weeks after treatment finished I got the NED which is no evidence of disease which is as good as one can get, The words all clear aren’t used , after 5 years of being monitored I will be discharged from the cancer team. But will always be able to contact them if I have any immediate concerns. That’s the point I will be in my mind all,clear. Hooe that’s helps. Fingers x for no radiotherapy.

Hazel x

Thanks Hazel, yeah that makes sense. I was shocked when they said I have to attend for 5 years but I suppose it’s really good to be checked on. And thank you 

hope your well x

It is often a pain the the butt having to plan around the checks, especially in the first year or so when they are every 2-3 months, but they are so essential to your wellbeing.  My return of cancer was picked up at a routine check before I even realised I had something wrong.  Don't skip the checks and don't be afraid to contact your team between routine appointments if you have any concerns.

Unknown said:

I was shocked when they said I have to attend for 5 years but I suppose it’s really good to be checked on. And thank you 

hope your well x

And after. 

Most teams will let you keep in touch after discharge. 
My oncologist has told me that although I won’t be on his clinic list I remain his patient and if there is anything worrying me I should bypass my GP and contact his secretary 

Oh that’s brilliant. I had a call from my surgeon secretary today, to advise me to be in for 7:15am on the day of surgery with the hopes I’ll be out the same day which would be me feel so much better. I remember the specialist saying ill be absolute sick of him by the time I’m done haha x