Newly Diagnosed - Muco Epidermoid Carcinoma

Hi  

So glad you joined here too ! You will get great support and I hope maybe someone else who knows more can  give you help, advice and reassurance 

x

Jo

If you type salivary gland in the search  , I see many forum discussions there on this topic  .  There seems to be different types of this Cancer but highly likely you will find a match and hopefully active users 

Jo

x

Thanks for recommending Jo really appreciate it xx 

Hi S

Welcome to our community. There are a few people here with a similar condition. I’ve done a date search for you here 

https://community.macmillan.org.uk/search?q=Mucoepidermoid&group=100#serpsort=date%20desc

Please be really careful of Google. There is much alarming information there. The best place for information  is your team. Make sure you take your time to understand what they are recommending. 

PS stick around. There’s lots of support here even though most of us have dealt with a different cancer. Good luck with your next appointment and let us know huw you get on. 

Hi, 

thank you so much. Yeah it’s hard but I can’t believe how good these groups are. I felt like I was hit by a bus yesterday.. was not expecting it at all but staying strong. I have a 6 year old son who I have to be mega strong for. From what Iv been reading there are a lot of people that have overcome the same or similar cancers so it does give a lot of positive feedback :). 

thanks again and yes I will. They took out the majority of the lump before biopsy etc but the lump was edge to edge cancerous so they believe they will need to do more surgery. The lump was only 1cm so they are confident we have caught it really early which I’ll be forever grateful for.

s x 

Unknown said:

They took out the majority of the lump before biopsy etc but the lump was edge to edge cancerous so they believe they will need to do more surgery. The lump was only 1cm so they are confident we have caught it really early which I’ll be forever grateful for.

Now that’s great news. 

Hi Welcome from me as well,to our small community. Sorry you’ve found yourself here , my cancer was tonsil cancer with several affected lymph nodes  am nowm3.5 years post treatment happily living my life. Will just reiterate please keep off dr googke you’ll onky scare ourself more than yiubare already. 
keep in touch 

Hazel 

Hi.. just an update from my last appointment. The cancer luckily hasn’t spread to any of my lymph nodes or anywhere else. The specialist wants to do an intense surgery to get the rest of the cancer cells and is hoping not to any radiotherapy. 

i am feeling ok in myself with the results and hoping to get good news after the next operation. 

take care xx

Thank heavens you’ve avoided RT. Fingers crossed everything goes well and thanks for the update