Hello
Had radiotherapy and x2 cistplatin over a period of 6 weeks finished 17th December and started adjuvent chemo cistplatin and 5fu 5 days ago oncologist suggest 3 cycles
My mouth is really painful ulcerated lips sore my throat feels worse than ever and unable to eat any tips please
Thanks Wendy
Does nebulizer help for mucositis??
No it helps with that awful sticky saliva you get with RT
Your ulcers are from the 5FU. Can you ask your chemo nurses if there is anything else that can help? I had Caphosol as well as the Gelclair. My lips got pretty dry and painful with RT so I used some organic beeswax lip salve which helped enormously, but you could use anything that doesn't have petroleum jelly in it. I found I was licking my lips a lot which doesn't help either so tried very hard on concentrating not to.
I hope you can get some help
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi I was told nothing with petroleum jelly in it has it could cause burns. I used a Burt bees product which had only natural thjngs in it.
the petroleum jelly is flammable.
Hazrl x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007