Nasal cancer

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I was diagnosed with nasal cancer on the 7th of December after a biopsy, I’ve since had ct scans and mri to check neck as well. Tomorrow I go for results and plan of action. I’m aware this is a rare cancer and am hoping to find people on here who have gone through the same or similar. Karen

  • Hi Karen and welcome to our little community. So sorry you’ve found yourself here but stick at round. There are lots of helpful people here. There are a few threads running. If you click on the link below you can have a browse 

    https://community.macmillan.org.uk/search?q=Nasal%20cancer&group=100#serpsort=date%20desc

    im sure somebody will come along and reply to your post but meanwhile you could tag along one of the others 

    Good luck with your meeting tomorrow. Take somebody with you if you can or failing that a notepad and make sure everything is explained so that you can understand  

    You’ll feel much better once a plan is in place 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you, i have notepad ready and my daughter who is a nurse is coming with me, I’ve been reading through some of the other threads and have already got a list of questions to ask tomorrow thanks to them x

  • Sorry to hear this news Karen p, i have not experienced cancer in this area but like most cancers, they can be treated or maybe surgery. Good luck with tomorrow. Take care.

                                                                 Chris x

    Its sometimes not easy but its worth it ! 

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  • Hi Karen

    so sorry to hear your news but you are absolutely in the right place here. I was diagnosed with bi-lateral tonsil cancer in June and had a neck dissection in July. All clear now thank goodness, just minor issues with scarring (nothing that is anything more than irritating). Waiting for diagnosis and then surgery/treatment is really tough - telling my kids was so hard and I’m really glad your daughter will be with you. 
    everyone here is here for you.. you can cry to us or rant and you don’t need to hide your feelings. You don’t need to protect us and I found that very helpful.

    good luck fingers crossed tell us how it goes 

    xx

  • Thank you so much for your reply. It’s such a relief knowing i will be able to talk to people about my fears etc,  m finding myself downplaying my worry to protect those close to me. My children are 27, 25 and 23 so not too young but i still don’t want them worrying about me. 
    im so glad you’re all clear now and i hope you are enjoying life to the full now x

  • Hi karen welcome me as well I went through treatment 3 years ago fir tonsil cancer I went through treatment with a guy who also had nasal cancer. He like me successfully completed treating fact we are meeting them on Sunday.  So life does continue. Thus part is the worst part the waiting and fear of the unknown. Let us know how tomorrow goes. Any questions just ask glad  you’re daughters going with you. 
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Karen p, I have three children just a shade older than yours and they were absolutely fantastic during my treatment and after. Obviously they will worry about you, but they will also want to support you too.

    I actually told my children all my fears and worries and they responded by being calm, kind and helping in all sorts of ways, including coming to appointments with me to hear some of the things I missed and coming to look after me post-surgery.

    I understand you wanting to protect your children, but I strongly suspect that they will actually want to support you in whatever way they can.

    One of the positives that came out of my cancer treatment was how close it brought me to my children and how much we all got out of spending time together that we might not otherwise have done.

  • Thank you Cathy. I know you’re right and I know they’ll be there to support me, i spoke to my son last night about my worry of having to lose my nose and he actually calmed me down and made me realise it’s not the end of the world. How lucky are we to have such amazing children, all the more reason to fight this!

  • Hi Karen and welcome.  I hope today goes OK and you get that plan.  At least you get to have a great Christmas (I know you will be feeling concerned).  I had the same sort of diagnosis timeframe and really appreciated one last "old normal" Christmas with my family.  Ea,t drink and be as merry as you can.

    As people have already said almost all H&N cancers respond well to treatment.  That treatment can be quite tough and the recovery sometimes quite extended,  but you get life with a new normal that gives a good quality of life.

    I am sure your kids are as perceptive as mine and already realise there is a problem.  It is tough telling them, but by doing so you will allay their fears running riot in their mind.  Maybe your daughter can help break it to her siblings?

    Stick with us and this group will be with you through thick and thin.

    Peter
    See my profile for more details of my convoluted journey
  • Thank you Peter, I’m grateful to get Christmas before any treatment starts. All my children know, they just don’t know how scared i am but after my meeting today I’ll be upfront with them all x