Hi everyone
My dad was diagnosed with cancer on Tuesday so I'm afraid we're still very new to this and don't know any of the correct terminology yet. Sadly, I'm sure we'll grow more accustomed as the weeks and months go on.
He had what he thought was an abscess in his top gum on the right side of his mouth but his dentist suspected something was not right and thankfully got him in to see a consultant very quickly. He had a biopsy and was told it was cancerous on Tuesday but we haven't really been given any other information as yet - we haven't even been given a formal name for it and don't know what stage it is at.
He is going to Guys Hospital next Friday for scans which we believe will give us a better indication of what we might be facing. I was just wondering if anyone could enlighten us on whether we're likely to find out any more at this scan appointment about exactly what stage it is at or if there will be a further wait to find out the result? I appreciate we're unlikely to get a treatment plan on that day but will we at least be told what stage it is?
Also, we've been trying to jot down any questions we might have but I'm not sure if we'll have an opportunity to speak to anyone to ask those on the day or if we'll have to wait for a later date. I'm not even entirely sure what questions we should be asking at this stage.
Any advice on what we might be able to expect at this scan appointment and what questions we should be asking would be very gratefully received.
Many thanks in advance for your time x
Hi Vicky and welcome to our little community. You have come to the right place to get help, tips and advice.
First off. Stay off Google. The places for information are the medics and this forum, google will scare you and can give you all the wrong answers.
The histopathologist reporting on the biopsy will know what the cancer is and your Dad's consultant will have this information already.
The scan results should be available in a few working days and will be discussed at a Multi Disciplinary Meeting (MDT) when next it meets. These are usually weekly and collect all the members of the department looking after cancer patients to discuss every case they are involved in. It's likely that you won't find out for a week or so. It depends when the MDT meets and when the oncology clinics run.
You'll get an appointment to discuss things so don't be rushed and make sure everything is explained to you
Have look at this section
There are links to the sort of questions you might ask.
Take pen and paper and jot down the answers as it's likely you might get overwhelmed and miss things.
Best of luck and come back when you know more
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Dani
Thanks ever so much for coming back to me. I had a feeling that might be the case. I think my Dad is expecting to find out what stage he is next Friday so I just want to be able to manage his expectations if we're unlikely to know any more for a while.
Thanks again for taking the time to help and have a lovely evening.
Vicky
You're very welcome. Remember this is all very new to you but not to your Dad's doctors. They are good at what they do so try not to worry too much in advance.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Vicky I can’t add much to what Dani has already said. It really is a waiting game. After my scans it was 2 weeks before I met my oncologist after the m d t had been held.hope this helps as once scans have been processed they need to be reviewed.
Welcome to our community group , any questions just pop on.
re list of questions
You can ask what treatment will be offered snd what timescale for treatment are you looking at.
Plus the staging of the tumour.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks Hazel. I must say I am so pleased to have come across this forum over the last few days. Everyone tells you to avoid Google at times like this (for very good reason!) but it is so tempting when you are so desperate for information. Thank goodness for places like this!
Hi Vicky As my oncologist said to me if he went on Dr Google he could diagnose himself dead while he was still reading it so to speak ! ! So stick to us on here and trust by our hospital team.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
My experience was similar, in that I had an unusual sore/lesion on my gum, although unfortunately my dentist failed to take it seriously and eventually I had to take the initiative and make a private appointment with a consultant to get a biopsy and diagnosis.
My cancer was diagnosed as squamous cell carcinoma from the biopsy (T1 at that stage, but T2 post op). Scans were to check for any other tumours, particularly in lymph nodes, but none showed up. No results were given at the time of the scans.
Once the scans were done I met with a team to discuss treatment, which in my case was removal of the tumour, a margin of jaw bone, and reconstruction from my wrist. I also had a neck dissection to ensure no spread of the cancer. All completed successfully.
As Beesuit says, your dad’s particular treatment, based on biopsy, scan and visual examination, will be discussed with a multi discipline team.
For me the important questions were about the effects of surgery and recovery time.
The team at Guy’s is fantastic, so rest assured your dad will get the very best treatment and care.
Hi Vicky, I'm in a similar position to your Dad. I had an ultrasound and biopsy, and my gp told me I have cancer in the lymph nodes and salivary glands 2 weeks ago. I had a Ct and MRI scan later that week and I am waiting on a hospital appointment to find out what kind of cancer I have and what treatment they will suggest. The waiting and not knowing is hard, but I guess we just have to trust that things are going on in the background and they will let us know when they have something to tell us x
Hi. Yes unfortunately the waiting is the worst part. Once you get s final diagnosis snd treatment plan everything falls into place. No comfort for you I now from my own experience.
There is a lot of behind the scenes planning that will be happening.
hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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