Mums diagnosis and treatment fears

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Hi all mum is 81 and other health issues. She has t4 mouth cancer tumour. After 3 diagnosis responses they have decided no chemo no surgery and radiotherapy but 4 weeks. 3 is palliative and 6 too much for her they think every day in London. I’m taking time off to go every day with her. I can do that but I’m worried about the side effects as she progresses and getting her to appts and what she may suffer with and how I cope with that as well or what she may need. Does anyone have any support ideas for her and me please and how bad is this going to get. I think that’s what worries me the most once I have to go back to work again thanks all 

  • Hi  

    Sorry to read about your mum. The treatment is a real challenge for even the fittest of us so your mum is going to need extra support. She will have a team at the hospital looking after her. Make contact with her CNS (clinical nurse specialist) and her Dieticians. Is she going to have a feeding tube fitted? She will find it hard to swallow after three weeks or so and definitely more so as her cancer progresses.

    What sort of timeline regarding prognosis has the hospital given you? You should be thinking of getting your mum's GP involved so that you have district nurse/ hospice care on standby should it become needed.

    Does she live on her own? When does her treatment start?

    There is a very useful thread HERE covering how to prepare for treatment. Not all of it will apply but it will give you a guide

    Stay with us. There is always somebody around to lend a hand

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks so much for replying I hope you’re doing ok. They have said curative a reasonably high percentage. They haven’t said about a feeding tube yet but said it may be a possibility. They have said four weeks five times a week. Initially was surgery but now it was 3 weeks which wouldn’t be curative or 4 for a better chance. She decided 4 but I’m not sure how she will get through four. I have a brother but he is phobic of hospitals and travel so it’s all me. I’m trying to be positive but I feel the weight of the responsibility alone right now. 
    the doctor is calling next week about care and district nurses. That’s my worry she is 81 and it’s a lot even for fit people. A friend just went through this and he was a lot younger 

  • You can only do your best. Try to get as much in place as you can. I would really be pressing to have a PEG. It would make life much easier for your mum. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge