Diagnosed mouth/lower jaw

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The biopsy of lesion came back as cancer likely affecting jaw. Will need surgery to include some jaw bone and nodes in neck, although they aren’t necessarily affected, I think.

Need scan and X-ray to know more and possible radiotherapy later.

Still reeling a bit. Quite a frightening future, but not sure of all the facts yet.

Thank you for any help, advice and support.

CathyCherry blossom

  • FormerMember
    FormerMember

    Hi Cathy.  I have just joined this site. I can’t offer any advice as my first appointment is on Monday so very nervous for the outcome. I just wanted to send you a cyber Hugging hug and positive vibes and to wish you well. Take care x

  • Hi Cathy. Not the news you wanted but at least you’re on your way to getting fixed. Surgeons do wonderful stuff with reconstruction and I’m sure you will be brilliantly looked after.  had a successful jaw reconstruction and I’m sure he’ll be along soon to add his words of wisdom. There is a forum member here  who has a blog on his jaw cancer. I’ll see if I can find a link. 
    Best of luck. Trust your team, they know what they are doing and they are good at it. 

    yes here it is 

    https://www.1in1440.co.uk/

    Best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • H I Cathy. Sorry it’s not the news we all wanted to hear. LIke  Dani  says there a few on here that have had jaw reconstruction am sure  will pop on over the weekend. 
    Remember we’re all here to help each other. 
    Once treatment plan gets in place your head gets to a better place. 
    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Nineteen welcome to our little community. There are lots of helpful people here so stick around and perhaps start a thread to tell us about yourself 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I’m a bit worried about any treatment delays given the knock-on effects of Covid. I’m obviously keen not to hit long delays.

    Does anyone know if the NHS is managing to keep up with the needs of cancer patients currently?

  • Your treatment plan is in place. It’s the new patients on the diagnosis pathway that are more at risk of delays. 
    Every trust is different in the way it copes but I wouldn’t worry too much

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Cathy  Welcome to forum. Dont worry about the treatment stopping. Once things are decided its like a bloody roller coaster and you havnt got time to be sick going from appointment to appointment. You will be dealt with a team of experts in their fields and literally they will look after you so dont fret. Just take things one day at a time as you will get through this and everyone is here to help you if they can All the Best Regards Min 

  • The thing is I got the initial consultation and biopsy privately.

    My original NHS referral hasn’t even produced an appointment to the hospital after nearly a month, so I panicked and got the diagnosis at a private hospital.

    So the results and doctor’s advice will pass to NHS and I’m worried it will suddenly grind to a halt just as I’ve found out what is wrong.