Hi everyone
I hope you are looking forward to the weekend - even though it sometimes doesn't feel much different to weekdays at the moment !
I have just completed week 6 of radiotherapy and have had my 2 doses of chemo.
Having been a bit cocky about being able to eat, the mucositis and burning/metallic taste in my mouth when I eat has really hit now. I am still able to swallow so will attempt to keep on with smoothies - I've been given some lactose free ones and I am adding non dairy high protein to them as I am now lactose intolerant. I do also have a tummy tube to fall back on if I need it.
I have my last week of radiotherapy next week and I am dreading it, and the weeks after, particularly as the pain has really ramped up, also my neck is getting really red and burny (and everyone says that the few weeks after treatment are the worst).
My classification is T1N1M0 I have HPV related SSC. They removed the primary tumour that was less then 2mm in the base of my tongue when they took samples from that area. I have one lymph node that has metastised but it had not spread any further. They did not remove the lymph node.
Anyway sorry for rambling (it seems a side effect of the treatment is not being very good at focusing !)
My question is; does anyone know how they decide to give some people 7 weeks of radiotherapy rather than 6 ? It seem to me that 6 weeks is the standard treatment (from my limited research).
I guess I am just wishing I didn't have to do this one last week - I am seeing my oncologist on Monday and I will ask him too - I do trust him - he has been fantastic, but I also know that protocol can be different in different areas and it seems Covid has affected treatment protocols (I am now wondering if this is why they didn't just remove my lymph node after reading some other posts here).
Thank you
Sasha
Morning Sacha
One his thing is that your neck will start healing as soon as the RT stops. It doesn’t keep working afterwards like it does on the rest if you, if that makes any sense. A week later there will be a huge difference. Factor 50 on it for life though
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
So whether 6 or 7 weeks we are all likely experiencing the same dose of radiotherapy.
Maybe. I had 67 Hazel had 73
Whatever you have it’s tailored to the cancer. I wouldn’t worry about having too little or too much. Similarly the dose of cisplatin is worked out on your weight.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Sacha. It is normal. Just hang on. You’ve done most of it. I do know how you feel but just take these last few days a day at a time. Tell us how you’re doing every day if it helps.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
