Hospital discharge- hospice care?

FormerMember
FormerMember
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Hi everyone, I wondered if anyone had any advice or had maybe been through a similar experience? My dad is currently in hospital, we recently found out his throat cancer had spread to his spine and lungs and he has been given a terminal diagnosis of 3-6 months. A huge shock for all of us as it seemed his throat cancer had been caught fairly early and was completely curable. He isn't able to walk at all and is still in quite a lot of pain but the hospital want to discharge him. It would be too much for my mum to have him at home, they have said 4 carers coming in the day but she would be by herself apart from that, it is just too much physically and mentally as he needs 24 hour care. We would really like him to go into a hospice, these are his wishes also, however the doctor doesn't seem to think that is an option, even though looking on hospice websites it seems like they do offer some respite care or inpatient care for patients with a terminal diagnosis. I think hospice would be the best place for him to have the best care. The other option is a nursing home which we aren't really sure about, he wouldn't get the psychological help there and with the current virus situation, none of us have been able to see him at all, and that wouldn't change in a nursing home...is it unrealistic to be thinking about trying to push for hospice care at this stage?

  • Good evening La16, so sorry to hear this news about your dad,i remember when my mum had terminal cancer and was discharged from the hospital but went straight to a hospice as my dad would not have been able to look after her that well. These places specialise in this sort of case and can offer the services and comforts you dad would need, a nursing home would not really have the time to do this, in my opinion. I think some now offer daycare centres within the hospices so the patient can go home at night or weekends if he is permanent. 

         Personally i would definitely try pushing for a hospice as it sounds he will need this sort of specialised care where they are treated like they extremely well and visiting hours can be quite flexible once this virus has gone. You could phone the local hospice and see what they recommend as they might send one of their doctors to the hospital to asses him. It would be a lot better than having 4 nurses coming and going to his house. I really hope your dad gets his wishes, send hugs to you all, take care .

                                                                                                            Chris xx

    Its sometimes not easy but its worth it ! 

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  • Thinking back a decade to when my Mum had cancer the local hospice were really good.  She was on her own and like your Dad it had spread to her spine et al.  I was caring for her as best as possible whilst holding down a job and living some 30 mins drive away from her.

    The hospice provided outreach services in the early stages of the terminal phase - they were particularly concerned for my wellbeing and provided some overnight cover a couple of times a week so I could get a good night's sleep.  Having made that initial contact and relationship Mum was admitted for some more intensive care - with the intent of her returning home.  Alas she never made it back home, but had a "good death" in a very caring environment.

    Don't just go on outside opinion and the websites.  If possible visit in person (I know, difficult at the best of times).  Speak to them and discover the options that may be open to you.  Their capacity is always limited, but even a friendly supportive voice to listen to your fears may help you.

    I hope this story helps give you some hope. 

    Peter
    See my profile for more details of my convoluted journey
  • Hi La16

    I'm so sorry to read about your dad.

    I agree with Chris and Peter.  I think it's worth getting in touch with some hospices and making some enquiries.  Your dad's situation is exactly what they're set up to deal with.

    I wish you and your family all the best.

    Linda x