Hi all,
I hope you are all coping at this current dreadful time. I haven't posted for a while but pop in regularly to see how people are doing.
I just wondered if any of you have had lung nodules and how they were dealt with. I had my routine CT scan on February 5th and went back for the results on 26th Feb. The consultants registrar told me there was no recurrence in my throat which was lovely to hear as I've been clear for three and half years now which was a recurrence but said it did show new nodules on my lungs. She had spoken to my consultant and he told her he didn't think it was anything to do with my previous tonsil cancer due to the time lapse and was more likely to do with my past smoking history and would be referring me to the Brompton hospital for a biopsy.
When I was copied in the referral letter to the Brompton nearly 3 weeks later I was shocked at what it said. The CT scan suggests that the nodule 3.3cms X 2.8 cms could be a metastatic pulmonary nodule or a new primary malignancy. Either I didn't really listen to the registrar (heard what I wanted to hear) or she played it down.
I didn't hear anything from the Brompton so called them. They told me due the Covid 19 situation all appointments are currently cancelled and to call back in 2 weeks which I did only to be told that they would not be seeing me and have referred me back to the Marsden who apparently didn't receive the letter and after finally getting to speak to the registrar she said she would get back to me but so far I've heard nothing- that was last Wednesday.
My point is what size nodules do you worry about. I think I read the bigger they are the more likely they're cancerous?
I understand the situation at the moment but does that mean I just get left on the back burner and just wait?
It's really difficult to get through to anyone to ask for their advice.
Is anyone on here going through similar circumstances? Would much appreciate any feed back from you.
Thanks for reading this lengthy post.
little-fi
Hello Fi good to hear from you again but sorry about the circumstances; not something I've ever heard about or experienced I'm afraid, you might get a better response if you joined the lung cancer group or failing that maybe call the Macmillan helpline.
Sincerely hope it's nothing nasty, let us know.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Hi Fi
sorry you’re caught up in all this. It’s such a worrying time for all of us still under treatment.
I had two nodules diagnosed before I started treatment but a re scan showed they hadn’t progressed so that was that.
Your team obviously can’t make a diagnosis from the scan so need a biopsy. I can’t help with the comments on your referral letter but if there was any real urgency I’m sure that would have been reflected in that letter...... surely?
I would ring the registrar again and keep ringing till I got an answer.
I hope this comes to nothing.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
