My husband had a full rhinectomy and removal of top jaw would like to hear from anyone who’s had similar experiences xxx

Hi

All the best with your journey.

My mum had full rhinectomy and partial cheeks removal plus neck nodes removed about 15 weeks ago.  Now almost finished four weeks of high dose radiation.  Doing well for an 80yr old.  Extreme fatigue, bad throat and lots of flem and watery swollen eyes and nausea.  Lost weight now 37kg.  Just found aggressive tumour between eyes and another in the throat.  We are unsure what the next steps will be now because the tumours remain.  Cant have the prosthesis till the eye tumour is gone.  Dust affects her sinuses a lot now and starting to lose hearing

Its a tough gig at any age but lots of people go on to healthier futures

Good luck

Sorry to hear your having to have the rhinectomy.  The prosthesis is quite snug, but as for the amount of dust etc you encounter daily I can’t comment you’d have to ask your ENT consultant.  I get on with my life, working, socialising, etc.  You’d have to watch that you don’t knock it off though as who knows where it will land. Mines had a few journeys around the house.  All the best to you.

• Hello, I'm having the same operation in May. The operation has been explained, but I'm anxious about waking after surgery. Any advice would be awesome. I'm so pleased your on the road to recovery and will.be getting a prosthetic nose soon. Have you been wearing anything? Many thanks Ellie 

EllieB65  This thread is over five years old and many of the replies are from people who are no longer on the forum.

Try THIS ONE which has some fairly recent replies