Hi everyone,
Thank you for letting me join this group. My husband has finally been diagnosed after weeks. First they found the brain tumour, then the lungs, finally found the culprit in lower esophagus.
We are hoping the MDT and oncologist referral will happen quickly so treatment can start but have been told we might have to wait a while. We hadve watched 3 ppl die of this disease in the last year so it feels quite urgent. The waiting is so frustrating.
He is struggling with his speech and has some fluid in his lungs. I am terrified he will get too Ill for treatment before it starts.
Hi Pauline1608
Welcome to our community, I hope you find it both informative and supportive.
I am Steve, one of the community champrions and my experience of cancer is via my wife who has Leiomyosarcoma.
I well remember the path to diagosis, in Janice's case complicated because she had pyometra, then sarcoid before a biopsy finally found the cancer. For her after the diagnosis there was a period of watch and wait before they even started any treatment but in the end we managed to make the cancer stable and been that way for over 10 years now.
Waiting is a very common frustration, though a sudden sense of urgency can be quite a fright too - at one point they asked Janice to attend triage and were very keen for it to be the same day - turns out a lung was on the point of collapse but in the end that was fixable.
There is quite a good peice on waiting here.
One of the things I found was how I could get so focused on Janice I was not always good at looking after myself, trouble is that making myself ill did not really help anyone. On here we recognize this with a couple of groups Family and friends forum and the slightly more sepcialised Carers only forum - you might like to take a look and perhaps introduce yourself there.
Feel free to post whenever and fingers crossed you hear something from the hospital before too long.
<<hugs>>
Steve
