Husband recently diagnosed. Mind is whirling!

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My husband has just been diagnosed. A 30mm necrotic and ulcerated tumour on his lower oesophagus. 
He just had a CT scan of his chest, abdomen and pelvis. 
The MDT team will meet on Friday and discuss his treatment plan. 

He is not feeling well at all. Still able to eat but no appetite.
He has been prescribed co-codomal and laxative powders. Co-codomal is not agreeing with him and the constipation from them was horrific for him, causing more pain.He has serious sulphur burps that make him feel sick and he is absolutely shattered. Very lethargic. He’s lost around 2 stone so far. 

Can anyone tell me what the usual steps are please? Is it surgery them chemo/radiotherapy or the other way around?

Any advice would be appreciated. 

  • Hi, there isn’t really a “usual steps” as there are various different treatment plans depending on the type of tumour, location and whether or not there has been any spread to nearby organs or lymph nodes. Unfortunately you are in the horrible waiting period when you don’t yet have answers to those questions. The CT scan will provide some and your husband may also undergo a PET scan and laparoscopy to get a full picture. At the moment, trying to keep his strength up through diet and whatever exercise he is able to manage are so important as the treatment plans for this form of cancer are pretty tough on the body. Load of appetite is not unusual but, if he is fortunate enough to still be able to eat, then he needs to continue to do so. Think of food as medicine. That’s what I did. Also try to maximise the calorie content of anything he does eat. I was adding cheese, butter and double cream to just about everything. Healthy eating is no longer as important as just eating. Hope you get some positive news following the MDT meeting…

    Cool Blue

  • Movicol was my best friend during chemo which bunged me up something rotten. I had a sachet every morning just as a preventative measure and it seemed to work a treat so might be worth him trying that.

    Unsure what the co-codamol had been prescribed for as certainly not something that I was told I needed to take at any point during my treatment. I did however end up getting some off a work colleague to help me sleep when taking the steroids they give you during chemo.

    Found the co-codamol helped as it makes you feel a bit drowsy.

    Russ