Hi there, I've found myself here trying to find support and reassurance. My mum has oesophageal cancer diagnosed two years ago. Until a month ago she had no real symptoms however almost overnight she couldn't swallow food or liquid. They discovered although the tumour hasn't grown it has caused a hole in her oesophagus into her lungs. It has been devastating. She had a stent fitted and can eat and drink again however she has the most terrible coughing fits. The doctors can't seem to give us much advice other than tell us she'll be very prone to infection as bacteria can easily get to her lungs.
Does anyone have any experience of this situation ? I feel so panicky and anxious all the time I don't know where to
turn.
Hi Tiger123 ,
Thank you for posting on the forum. My name is Syed and I’m a member of the Community team here at Macmillan. I’m sorry to hear about your mum’s diagnosis and how her condition has changed. It sounds like a difficult time for you both at the moment.
Whatever your circumstances may be, we will try our best to support you. I hope you can find the Community to be a place of kindness and support.
After reading your message, it may be beneficial for you to contact your GP, especially with how you’re feeling at the moment. It’s worth remembering they are here for your emotional and physical wellbeing, so you can talk to them in confidence about anything you may be going through. They will also have access to a wide range of local support services available for you.
I’m glad to see that you’re a member of our Oesophageal Cancer forum and have felt comfortable enough to post on there. I’m sure members will eventually reach out to support you. I was wondering, it may be beneficial for you to consider posting in the Family and Friends as well as Carers Only forums.
On the Community, we have a Ask an Expert section on the Community page. Here you have access to a wide range of professionals from our Cancer Information Nurses to Work Support advisers. Should you ever need them, you can ask them questions and they usually respond within 1-3 working days.
You are always welcome to call our Support Line on 0808 808 00 00 or alternatively, click here for webchat. The Support Line has a wide range of teams who can provide you with emotional and practical support. They are available 8am until 8pm, 7 days a week.
If there is anything else me or my team can do, please don’t hesitate to get in touch with us here and always remember the Community is available 24 hours a day, 7 days a week. I wish you and your mum all the best.
You are not alone,
Syed
Macmillan Community Team
Best wishes,
Syed
Macmillan Community Team
Hello Tiger123
I am sorry that you did not receive further replies after Syed posted to you, it does seem like you Mum's experience is quite different to anything that has been posted on the forum before, which is why there is a lack of response.
Have there been any improvements?
Lowe'
