Hello

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I’m an esophageal cancer survivor. I had the surgery about a year ago and I’m now at the stage where I report back to the MDT every quarter on my condition.  I’m finding it difficult to talk to family and friends at this stage because I don’t want to worry them about my recurrence anxieties. As far as they can see, the scare is over and everything seems on its way back to normal.  I don’t want to change the view they have. Most of the time I feel that way, but when I start to feel unwell or some part of my body stops working properly I start to worry what it means. It would be nice to talk with others who are also experiencing these kinds of anxieties. 

  • Hi Minky, my husband had ivor lewis surgery 9 months ago. He is still having abdominal pain as well as pain in scar sites. Still receiving 6 week stretches. He had a scan last week which came back clear of disease but some fatty deposits in/on or near his scars, don't know what that means and is to get another scan in 3 months but all he heard was free from disease. Good news but doesn't stop me being anxious about his ongoing issues and what they might mean. Everyone in family now carrying on as normal including him and me but the nagging worry is still there. My husbands not anxious but I am. I guess everyone is different in how they cope. I hope you can start to look forward. Someone on here once said to me there's no point living life like you have a suspended death sentence and I'm trying to take that on board. My husband is keen to move on, going away for a few days holiday, taking each day as it comes and I'm trying to follow suit.  Like you I don't express my concerns to my family because they where all devastated at the diagnosis and worried about his outcomes. For me it's good to see things getting back to normal, see everyone smiling again and laughing out loud. So I'm going to keep my worrying to myself and hopefully as time passes the worry will ease. I hope you are feeling generally well but if keeping your worries to yourself causes you stress it might be helpful to confide in someone close to you or your health provider.

    Take care

  • Hi Minky just want to add my perspective is not a cancer survivors perspective merely my experience as loved one of cancer survivor. I'm not in your shoes or my husbands so can't know how it feels to face everything you had to face, all I know is I quaked when I saw the procedures he had to endure. 

  • Hi Ella, Thanks for your sharing your thoughts. Your anxiety seems similar to mine and it is helpful to hear your perception and how you’re dealing with it. For the most part I’ve been able to keep the worries from taking hold and I do want to put it all behind me.