Feeling alone

Hi  and a warm welcome to the Online Community. I'm sorry to read of your partner's diagnosis. I myself have a different cancer and have had different treatment so can't help but I see you've joined the forum which will will give you the best support and I promise you won't be alone. Others will be along soon no doubt to answer & I've tagged the Community Champion Lowedal to say I've welcomed you.

It’s always helpful to others if you write a little something (or a lot) about yourself and your partner's journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. 

The Macmillan Support Services also provide lots of information, support, financial guidance or just someone to listen.

Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

Sending you welcoming hugs B xx

Hi Cwn

Another welcome to you, you are safe here.

I do hope that in the coming days you will feel less alone, and I imagine that your family would not consider your worries as a burden, they too will have their own worries about both of you and I personally find that it is better to talk.

MrsBJH has already given you some tips on how to update your profile and access some of the Macmillan services. which I hope you will consider. 

With regards to your Partners OC diagnosis, it seems that you will know more once the MDT has taken place on Tuesday (I wish you luck with that, I know too well how frightening this time can be for some, but remember that we are here for you)

You will find out which tumour type your partner has, (if you have not already been advised) and you will also know whether there will be a view of giving Radio or Chemotherapy (or a mixture of both) and whether the results of that will determine whether your Partner will be offered surgery. I imagine, your partner will also find out whether the cancer has spread or whether it is localised. All of these things will determine how they can go forward with the treatment.

With regards to the chemo.... Over time the way that chemo is administered has much improved, that said, everyone reacts to it differently and in many ways your partners mindset will have a very important part to play at this time.

My Husband Dal, was diagnosed with Stage 4 Oesophageal Cancer with secondaries in his lung, liver and lymph nodes, at the beginning of May 2020, T3N3M1 GOJ,  we know that his condition is not curable, but it is treatable and I am pleased to say he is reacting to his treatment extremely well. The nightmare that was his initial diagnosis and the following days stays with me, I know that had he declined treatment that he would not still be here with me, I also know that even though his prognosis with treatment was generalised as being just over a year, to date, he has astonished his oncologist and all of us at how well he now is. 

I have been writing a BLOG for the past year, which you may like to read, it I hope will give you some positive results and ideas. (you'll need to start at the bottom of the page.

If you would like to chat at any time, feel free to do so, and please, keep us updated on how things are going with you both.

Lowe'

Thank you for your messages. It really helps that I have some support. I am almost looking forward to knowing what it is exactly that we face . My partner is being able to eat a little more now , a relief as he can't afford to lose much more weight.

Thank you