So little update on my husband ... well quite a long one actually 
He started chemo on the 30th December- improvement almost instantly. He began eating very small amounts of food and drinking his shakes . Mental health improved greatly .
4th December he got very lethargic and was being kind of snappy and generally different . 5th December he was showing signs of confusion and slept most of the day on the sofa in and out of sleep . I checked his temp throughout the day . By 6:30 is temperature was high . Called the emergency number and sent to medical assessment . He was in hospital for 3 nights . One the 5th his infection markers were at 270. But got better and came home . He finished his oral antibiotics and was able to begin the capecitabine on the evening of November 12!
So since then his appetite is through the roof but he's again bringing up spit , I've noticed it's getting less like paste now. He was taking paracetamol 4000mg a day but now as and when needed . He's getting annoyed because he can't quite eat what he wants yet . He no longer uses shakes and is just having meals .
He does complain of chest pain at times . He said his chest isn't tight or giving shortness of breath . He says it tumour pain . It's doesn't last long and paracetamol does help .One of his nurses said pain In the area is a good sign that the tumour is being effected by the capox (but I can't find evidence of this online ) Do people feel pain around the tumour during chemo ?
Hes having a PICC Line fitted tomorrow (he's nervous) and he's back at the Marsen on sat for a Pet scan they want for a baseline . Hes also able to have a treatment called Claudin 18.2. Due to chemo being delayed for a week due to the infection his bloods are on the 27th and 2nd round 28th
He looks fantastic since he's started treatment and he even looked good in the hospital (well from the 2nd night ) He's working in his office and driving about , he talks a lot more too.
People who saw in December can't believe the difference . A lot to do with his mental state too I think .!
im just so very keen for him to be able to eat a little better but im aware hes totally new to this journey .
Im actually coping so well and I feel so much better . Feel actually quite proud and surprised ! Full of optimism as always 
️ and still reading books (massive bookworm)
I hope every one is doing as well as they possibly can
Tiff xx
Hi Trisha
So we spent short while in A&e
bloods , we're ok ( slightly high for possible clot) obs all fine, chest x ray fine , CT scan also showed no clots . ECG normal
So they believe it to be tumour pain . Is it from the capox (no idea) but I hope it's the horrible tumour being attacked! They advised him to take more than paracetamol and to try a stronger painkiller . Opioid based meds were causing migraines , but that was when he was super ill and not eating . He was fine with it through the night .
His eating was much better yesterday and he's still getting louder and more like himself 
PET scan from Marsden sat and hopefully PICC line on Tuesday in Derby
xx
Thanks for the update Tiff onward and upwards ! Hope your son and his nan enjoyed his birthday shopping 
Take care Tricia x
Another uplifting post
