I think I'm like a few of us on the forum, waiting for news from Jules. Sending her love and hoping the post-op recovery goes well xxx
Hi Jules,
There is certainly nothing easy about this journey and only those who have gone through it (or supported a loved one through it) can really understand. But, as you say, it is doable. I still can’t believe that they are considering sending you home today only 4 days after your operation!! When you’re back home, most of your time will be taken up with managing your medications and feeding tube, sitting/lying down and sleeping. Wouldn’t plan on doing too much more. CB
Agreed 100% CB, it's unbelievable tbh! Especially considering all of these additional problems Wicky is encountering at the moment.....
Totally agree don’t rush home ! I know hospital is not the easiest place to sleep etc but the tendency is to try and do things at home I don’t intend leaving until I’m good and ready when it’s my turn !
Tricia x
Hi Tricia,
Well I was in for 16 days after my operation. Wouldn’t have felt up to going home much before that and I don’t think my wife would have wanted to have the responsibility for me either! What stage of your journey are you at now? CB
There are various tests that you have to pass until they will even consider being discharged. This all sounds very odd to me!
Third cycle of FLOT CT scan 3rd Feb and if all ok surgery beginning March !
tricia
Thank you cb, wish the original doctor hadn't mentioned today, as original surgeon looking at weds, which was what I was going for bare minimum so thank you cb, all the advice much appreciated by me and the dietician I just saw ref dumping and portion sizes, just about to try soup, jelly and ice cream, first solids in months x hope things are all good for you cb
I’ve just found the BRI patient info for oesophagectomy …… it definitely suggests a relatively long stay
My timescale was pretty similar last year. My 3rd cycle of FLOT was 17th Jan and surgery on 29th Feb. You’ve quite a year ahead of you as I’m sure you know from reading other people’s stories on here but, by this time next year, you will be where I am now… You can do it! CB
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