Hi All,
I have not been on the site much, and I apologise for that, things have been busy in our world and there has been some encouraging news,
We are waiting on a scan confirming that the recent Radiotherapy Dal had on his Liver, has been successful, and we are waiting on another scan to check on the cancer (or lack of it) since Dal had to be taken off of the Trial, officially that was in October, but other than 5 sessions of radiotherapy in November on his Liver, he has been off treatment since May.
He is doing very well, he has been advised that currently, there is no need for more treatment, and depending on the outcome of the scans, (which have been delayed until next year) it is not expected that more treatment will be needed anytime soon.
I just wanted to drop a line and thank those of you who have kept in contact, who have sent out positive thoughts and healing prayers for Dal, as you have made this journey more bearable.
If you are just starting on this journey, or if you have been on it for a while, please try not to give up hope, Dal was advised in May 2020 that even with treatment he would have around a year left with us, in May 2024 after many different treatments and some fantastic support from hospital oncologist, treatment stopped because of Pneumonitis on his lungs, in November, we were advised that things are really positive.. Keep focused, keep making plans, and never give up.
I wish each and everyone of you the very very best for 2025 - and Thanks Again x
Lowe'
Lowe, this is such good news; both for you and for us, as we follow in Dal's footsteps on the treatment journey. Rod has had 7 cycles of chemo, immuno and trial, with just a week's break, when his mouth was unbearably sore. You may have seen on other threads that after 4 cycles there had been a 50% reduction in all tumours. His last CT scan, after 7 cycles, will, hopefully, show a further reduction. We'll find out on 30th but Rod is feeling happy and convinced that he and the treatment are winning. It would be so good if we too could have another 4 years of being together, like you and Dal.
Here's to another precious Christmas 
Best wishes to you both,
Lorraine xxx
Hi I am so happy to hear your news it gives us all hope. I am new on this forum and everyone has been so supportive. We are still waiting on the full diagnosis but should have this after a PET scan tomorrow. Absolutely terrified but reading your post has made me believe again. Thank you and have a lovely Christmas x
Rod is doing so well Lorraine, it is of course stories like ours that gives hope to others and to ourselves, it is the most devastating news in the beginning, and sadly for some that is what it stays, but for many many more the treatment has advanced so much that there is always hope.
I continue to wish you guys the very best of everything and may this be one of many Merry Xmas's x
Lowe'
Butterfly77, I am glad that you found the forum and wrote your initial post, sometimes places like these can be scary, but this forum is full of wonderful people, and I am glad that you have found the support that you have needed, I am sure that will continue on through the coming year.
The waiting is by far, one of the hardest things, because, no matter how hard we try to stop it, our minds just keep thinking about what is coming and generally it offers up worse case scenario's, keep believing, stay as positive as you can and talk to each other every step of the way, you have to communicate, this affects both of you, and together you will support each other through this journey.
Enjoy your Christmas as best you can and give thanks for every day, Being terrified is absolutely understandable, but belief is the best way forwards. xx
Lowe'
Hi Claire,
I am glad that the blog has been useful in some way, it is a rough journey at times and even being part of this forum, I would often forget that others are going through the same (or worse) as we have been.
As you mentioned in your posts, the waiting is the worst, the uncertainty, the fear, and I hope that the support that you have been given, and have given to others is helping you in some way.
Best of luck going forwards.
Lowe x
