Hello everyone. I am a 48 y/o male from the US. I have been having what I would describe as mild dysphagia for about a year now. If I take slightly smaller bites of food, I do not have any issues swallowing, I still eat the same foods I always have and do not avoid any specific foods. My dysphagia is specific to solid food, generally anything over about what I guess I would consider maybe 60-75% as large as I would have done before noticing the symptom. Soft foods and liquids are no issue. I know no one can diagnose nor am I looking for one, just curious as to what symptoms you all had and how long you had them before a diagnosis. I have always had white coat syndrome and have generally avoided doctors for most of my life. I know I need to get in to a GI to get scoped, still working on the courage to do so. I haven't told anyone about my symptom; I need to tell my wife so that forces me to address it. I guess I haven't told her yet as I know that would set into motion things I can no longer avoid. In the year (I think it started in Sept 2024) since I first noticed it, I don't think the swallowing issue has really changed for better or worse; it is basically the same as it was last year. I have read that once you notice symptoms of EC that it progresses pretty rapidly, although that's ambiguous as rapidly is kind of open to interpretation. For those that had dysphagia, which I've read about 90% of people with EC have, how fast did it progress (if it did) from when you first noticed it? Was dysphagia your only symptom prior to or at diagnosis?
Hi. Hopefully you do not have this disease. But as anyone on this site will tell you it is not a disease that reacts well to diagnosis delay. Catch it early and you have a good chance. Delay and the consequences overtake you rapidly. Do get yourself checked out asap if you have any concern whatsoever and do not self diagnose. I wish you well and hope you are all clear.
You are sufficiently informed and concerned to have made your way to this community. Not everyone experiences dysphagia in the early stages of the disease but it is as you know a red flag. Rather than seek out anecdotal accounts from others, (with what purpose in mind?), it would be prudent to get yourself seen by a medic who can give you a definitive answer.
Hi,
I went to my doctor within 2 weeks of first experiencing swallowing difficulties, had an endoscopy and CT scan a week later and received my oesophageal cancer diagnosis 5 days after that. It was made clear to me that it was only my prompt action that saved my life and gave me the option of a curative pathway. I am now 18 months post oesophagectomy, doing pretty well and grateful to have been given this chance. Get yourself checked out ASAP
Hi I have Stage 4 inoperable EC and am currently having targeted therapy with Herceptin, I am also having Chemotherapy but the combination I was given had intolerable side effects for me so has been stopped and they will revise the drugs.
Dysphagia was not one of my first symptoms.Instead I had a permanent feeling of fullness in the central epigastric region.I also had early satiety when I did eat.Dysphagia came a few weeks after diagnosis and has gradually increased .A stent was put in 2 mths ago which helped a little briefly.But the stent has now slipped and in a few days it's going to be removed and a new Stent put in.
I had NO other symptoms at all...so I urge you to get the apt with a GI specialist and have a Gastroscopy.In the UK they offer sedation with this procedure so you could ask for this perhaps ( Fentanyl and Midazolam) the earlier this ca is caught the better your chances if survival.Please do not delay.
Liz
Hi,
I had a dysphagia episode around July/August last year. I didn't think too much about it. I didn't experience another episode for about a month, then it happened again.
Again, I thought it was just me eating too much in one mouthful. So I guess I started to subconsciously started to chew my food more thoroughly. Another month went by and then another episode. I went through December with no issues. January this year I had two episodes and then in February I had an episode two weeks in a row.
At this point I figured it would be best to see my GP who then referred me for a Gastroscopy for which the nurse told me "The reason you are having difficulty getting food down is because there is a blockage and unfortunately it is cancer."
I was in shock and obviously devastated. I said to the nurse "I guess I have to do the right thing." For which she replied, "You already have by seeing your GP."
That was March 18th this year.
I highly recommend you see your GP and try to get a Gastroscopy to be sure.
I hope all goes well with you and there is nothing too serious causing your symptoms.
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