I dont know where to start really. My SIL was diagnosed in July, and despite chemo and immuno has been deteriorating rapidly. He is struggling so much with the pain in his bones, the cancer has spready through his spine/ribcage and hips, and hes moving around less despite being on over 300 ml of morphine a day plus oxy something the pain is never ending. Im trying to support my daughter (she is still trying to work full time) but im struggling too. Seeing the amount of pain he is in is horrific and has reduced me to tears. I dont understand the whys and wherefores, and he has now just started radiotherapy which i understand will probably increase the pain even more. Sorry folks, i feel that i need to offload onto someone, my daughter used to be my listening ear, but at the moment shes got so much on her plate i cant talk to her about this. I need some answers / input
Elsie, never and I mean NEVER apologise for letting rip on this wonderful forum. Every single one of us in this support group will be empathising with you and your family. My advice? Rant away, day or night, or both! There's always someone on here who will be there for you.
Much Love to you and yours
Anthony x
Hi
what a dreadful situation for you all,:cancer has no boundaries does it ! but please know that as Anthony says there are always people here with their own stories to tell who will support you also there is a macmillan help line I haven’t used it myself but might be good for you and your daughter to talk to them !
Sending my love and never feel bad about offloading on here
Tricia
elsie 66 you are in the right place and as our lovely bob says this is the place to say what you want, when you want, and question/ask anything, its a unique family we have all joined not voluntary, but what a family to be in. no rules or hand book for dealing with this cancer so and so, but the help, support and advice from people already starting/further along/completing this journey is all there for you to use.
love jules
Hello Elsie, I'm sorry to read about your struggle and this awful experience for you all. Your son-in-law must tell the MDT if the pain relief is inadequate. My husband was 'told off' by his for waiting until his appointment to tell them how much pain he was in. His was in his mouth but there are others on here who have had pain in their back. I think it was because the tumour in the oesophagus was pressing on the spine. I hope he gets some respite soon.
Sending love,
Lorraine
Hi Elsie66
So sorry to hear your son in law is going through this .It must be very stressful and upsetting for all the family .
We were told by a cancer specialist that radiotherapy can help alleviate bone pain …I’m assuming he is still at home ? If so I would suggest contacting his specialist nurse , Community nurses , Macmillan nurse ( if he has one ) and everyone who is involved in your son in laws medical care to emphasise the pain he is experiencing and ask about Hospice care ( either at home or in an hospice ) where his pain could be managed more efficiently. We did this for my Dad earlier this year .He had multiple cancers including rib cage and we managed to keep him pain free and comfortable.
Sincerely hope your son in law receives the help he needs asap
Best wishes J
So sorry to read this, so distressing for you all. Please, please reach out the pain / care team over and over again if you have to, to get them to address his pain. How awful for him and for you all. I hope someone somewhere can help. I’m so very sorry sending love and strength to you all
claire xx
Hi Elsie. So sorry to read about the pain your son in law is going through and the stress on yourself his family. Most of the major hospitals have pain management teams. I am not sure how they liaise with out patients but I suggest you get in touch with his nurse specialist and see if anything more can be done. I have not experienced anything like your son is going through but when I was in pain I phoned the help line and was admitted to the acute oncology ward at our hospital immediately and they sorted me out. I do hope he can get some relief soon.
Hi Elsie66,
Can relate so well to what you are going through
My husband has stage 4 oesophagal cancer with bone metastases in rib, spine & pelvis. Has had chemo, radiotherapy, & now more chemo with immunotherapy. He was diagnosed in April 2024 & it just keeps spreading.
Watching him struggle with the pain is the worst thing ever & breaks my heart. He spends most of the time lying on the bed as it's the only place he feels vaguely comfortable. He can barely walk & shuffles around with a walking frame.
Sometimes it's just too much to bear - his life so reduced & his strength & spirit destroyed.
Am trying to stay strong for him but it's so tough.
Sending hugs
MOLLYTK
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