Just need to write it down

Great that you've joined the forum so quickly. It took me a few weeks but have found it a great source of support, inspiration and information. 

Hoping your Mum is dealt with as quickly as possible and that the team is as kind as they have been to my husband.

Hello Samstar,

Just checking in to ask how you are?

Thank u for checking in, am OK still worried as mum is yet to have her CT  she has had bloods but since the initial appt last week we are in limbo which just feels so weird and confusing,  the biopsy isn't back yet either so since they told us last week they say the 20p sized growth suspected cancer we haven't got any forward, just wish we had a plan xx I hope u are OK and again ta so so much for checking in xxx

Hello Samstar

The waiting is the worse thing. When my husband had his emergency endoscopy, we were placed in a side room as a doctor wanted to talk to us, Husband had an idea something was wrong as the growth restricted the camera. All we were told at the time was it is something nasty. Sent for a CT scan next day, then wait. Longest two weeks ever, we were then told the biospy's showed cancer and needed a PET scan, which also showed spread to the Liver. Not the news we wanted, but at least after all of the uncertainty, we know what we are dealing with. 

Fingers crossed your Mum will have some good news soon, chin up, we are all here for support.

Has your Mum been given an appointment for the CT scan yet? My husband's experience was the same as Bikerbabe's, in that the endoscopist had difficulty getting the camera down. Then, called into a side room, the endoscopist told us there was a 4cm tumour at the junction. The CT scan the following week showed it was 6cm because it was also growing outwards, through the oesophagus wall. Initial results from the biopsy took a couple of weeks, I think, but it was the CT scan that showed the spread. He never had a PET scan.

Treatment is going well. There was a 50% reduction in all tumours after 4 cycles. The 6th is next week and yesterday he had his PICC line removed and surgery to fit a port.

We're taking this as a good sign that the oncologist anticipates ongoing treatment.

Stay strong and hopeful,

Lorraine x

Hi Lorraine

Good news about your husband.Progress looking good and good decision to get port fitted. I had one from the outset and overall I think it helps with a general feeling of wellbeing 
and normallity once the pump is removed. Safer too I believe - less chance of infection. My latest CT scan after 6 phases ( 12 Infusions of Nivo + Chemo} contines to show Complete Response making Christmas much more appealing especially as the first Oncologist I saw predicted I wouldn’t make it till this one! 

David, that is brilliant news! Rod's next scan is on 21st. Roll on Christmas