Hi
I’ve not been participating on this group for a while but I’ve popped on from time to time and I’ve been reading some of the posts .I have to say the support on here is phenomenal!
It’s 18 months since I joined this group for advice and support whilst my husband was going through his oesophageal cancer treatment for stage two adenocarcinoma in the junction between his oesophagus and stomach ..Fast forward to today and he has adjusted well to his new normal both physically and psychologically His weight is stable and although he no longer feels hungry or thirsty he has a routine for eating and drinking that seems to work for him .He’s had a couple of scares in the last six months but an endoscopy and a CT scan revealed that although he has been left with legacies from the chemo and surgery (which is being treated with meds) it’s all looking good so far regarding the cancer and we’re very grateful for this .Life does go on regardless and we make the most of everyday .It seems such a long time ago now .
I’ve unfortunately seen another side of this cruel disease very recently with the loss of my Dad , seven weeks from diagnosis to him sadly passing away .It wasn’t possible for him to be offered any treatment as his primary cancer couldn’t be found .So I think it’s hit home for us both that my husband and others who can be offered treatment are the ‘fortunate’ ones , (for want of a better word ) .My view now is , if the options are there then take them without hesitation .I know my husband pondered for weeks regarding the surgery but he’s glad he accepted it as he now feels it was his only chance at the time for a possible cancer free future ….Hopefully in three years time we will find out if it was all successful .
Wishing you all success in your treatments and your own individual experiences in dealing with this awful disease.
regards J
Really good to hear an update from you J
I am sorry though to read of the passing of your Dad, I had a similar experience a couple of years after Dal was diagnosed, it is certainly a cruel but enlightening reality.
I wish you and your husband all the best going forwards
Lowe'
Hi CB
The legacies I’m referring to are Oesophagitis in what little of his oesophagus he has left . Gastritis in what is left of his stomach and some mucosal breaks thrown in for good measure 
All acid reflux related and cause him pain from time to time ..( a burning in his chest ) He takes meds though to keep it under a certain level of control. He cant bend down very far now as this can trigger an episode off .
A scan revealed he has developed osteoarthritis in his hips , knees and in his spine at the top of his neck which also causes pain in his shoulder .His specialist has suggested the FLOT chemo may have contributed to this as he had no bone issues before his illness started and my husband said all the way through the FLOT chemotherapy cycles that he felt his bones were ‘taking a battering ‘… but who knows ?
He doesn’t let it get him down though , he’s just more mindful these days about certain movements which could trigger the pain and reflux .It’s certainly slowed him down .
regards J
