Stage 4 cancer diagnosed today

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Hi all I recently made a post about a 2cm tumour in my oesophagus ,today I found out it has now spread to my liver stage 4 , the doctor has told me that I will start cheamo after a meeting on Tuesday , but no radiation or immunotherapy, is any one else in the similar position as I’ve heard immunotherapy responds really well with lynch syndrome which I have any advise welcome or positive stories thanks 

  • Hi Kevin. I also have 3cm tumour in oesophagus, spread to lungs stage 4. I am on 2nd cycle of chemo and  symptoms have vanished. They only do radiation when local I was told. Diagnosed beginning of November, max 6 cycles of chemo, tests after 3rd.  I am very positive they wiil shrink but maybe I am being too optimistic, we shall see. They my use immunotherapy if not successful bu can be risky

  • Thanks for replying fingers crossed for you 

  • Hi Kev, 

    My husband was not offered immunotherapy immediately, he was given Chemo, every two weeks for around 6 cycles, which is pretty much 3 months, and then when he responded well to that, he was given immuno, so potentially this could still be possible for you, just a little bit down the line. 

    My husband was diagnosed incurable with Liver Lung and Lymph node mets, he smashed all the suggested prognosis and has done really well (for the most part) as it is now over 3.5 years since diagnosis. 

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Thanks for the reply I’m so happy your husband is doing so well , the trial is for cheamo and radiation straight away so hopefully it works it’s tough at the minute waiting for answer but positive stories like yours make me feel so much better that there is some hope 

  • Sorry cheamo and immunotherapy not radiation 

  • Good to hear that Kev, 

    Keep focused, and I wish you all the very best . 

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Hi Kevin,

    How are you coping with treatment?

    My husband also has OC spread to liver, we are just awaiting treatment plan.

    Angie

  • Hi My husband previously had stage 4 terminal bladder cancer, treated with immunotherapy (Pembrolizumab). Against all expectations, he had a total response: gentle treatment, no side effects (some post-tumour pneumonitis), quick infusion every six weeks.  Wonderful in contrast to chemo. When he'd recovered and was back to normal, the OC struck ...

  • Hi Angie sorry to hear about your husband , I started last week as I’ve said in the post I’m on a trial cheamo and x2 immunotherapy drugs , it’s been a week now and I have been okay today and yesterday maybe a bit tired and an upset stomach but nothing crazy as of yet. I was told palliative cheamo only by the doctor who told me it had spread to my liver , I was trying to push for immunotherapy but was told I couldn’t have it luckily my oncologist got me on the trial which is called STAR -221 based in Harley street London everyone there is so nice I felt although the nhs is really underfunded and over worked I get that but everyone just gave up one me where as when I go to London everyone is so nice and positive I would definitely see if it’s an option for your husband if you can.