Stage Four diagnosis - is there any way back or are we just holding back the tide?

Hi Angie

How you both doing?

Saw your bit on consultant being blunt with you. I had a registrar explaining my diagnosis and I wouldn't say he was blunt but I guess told me the plan in shall I say black and white, no glossing over just telling me straight.

I think they have to be a bit like that so there is no confusion or false hope given to the patient as to what they are facing.

I agree it can sound harsh but I guess that's how they do it

I do hope you get good news when you see him. Always here for you both

Dean

Hi Dean

That's good news for you then. I wish you all the best for the future.

Yes all the waiting has been agony. Initially they thought mine was contained stage 2 but then found out after MRI and PET scan was in the liver. Devastating but trying to stay positive.

Take care.

Carole

Hi Carole

Thank you for your kind wishes 

Sorry to hear your diagnosis got worse after your scans that must of been so difficult for you. You do have to stay positive, it is hard sometimes but these new chemo drugs can work wonders so I wish you all the very best for the future

Dean

Thank you for your support Dean.

Take care.

Carole

Hi CFG1961,

How is treatment going for you? Hope you are doing well.

My husband starts Capox shortly.

How are you? I hope you are doing well and everything is working well for you.

This story gives me some hope. 

Kayleigh x 

Hi Carole,

How are you, how is treatment going?

We had our oncologist appointment today, my husband will be having 6 cycles every 3 weeks and tablets at home.

My husband is having terrible constipation at the moment, did you have this with the morphine?

Take care

Angie x

Hi Angie

Glad your husband had his oncology appt at last. Does his treatment start soon? I am having 8 cycles of Capox and tablets at home. Had a blip yesterday when I kept bringing everything up but fingers crossed this has settled down.

When I was having Codeine tablets I had terrible constipation, they even thought I had a bowel obstruction after 3 months of taking them. Nobody prescribed me morphine then. Anyway have got morphine now but I try not to take it very often. Ask his MacMillan nurse and they can recommend which will be the best constipation sachets/tablets to take.

Hope this helps.

Carole x

Hi Carole

Yes Codeine is not good I had the same problem. I didn't get on with morphine either so just had paracetamol then max dose and that seems to work.

After chemo have Omezprazole which seems fine too.

Starting my post op chemo next week at 70% strength so hopefully it will go ok.Im on FLOT which is through a PICC line is Capox the same?

Hope you are feeling ok now

Best wishes

Dean

Hi Angie

Pleased to hear your husband has had his oncology appointment. That treatment is different to mine so not sure how it will be for him. Like Carole says talk to your Macmillan nurse about the constipation as they will prescribe something to help because I know that's painful.

Had my PICC line in yesterday ready for FLOT chemo next Thursday, here we go again!

Hope your husband's treatment goes ok, keep in touch and let me know how it goes please

Best wishes

Dean