My growth is at the OG junction, I am swallowing fine, no spicy food, onions or garlic. I have to eat/drink slowly. My 1st meal, porridge tends to go down, no problems as do yogurts. My other meals are then hit and miss, which are becoming more of a miss.
Sorry to be descriptive so early, food goes down, say 3 mouthfuls, I then get tiny burps, then salvia increases, I then bring up clear sticky mucus, sometimes food, sometimes not. The consultant said (after my staging op) it is very tight down there?
I have my 1st treatment on the 23/10, 1st apt with the oncologist this Thursday
So instead of constantly worrying about how many CALs I am getting each day, does anyone have high calorie supplements , I have brought ensure which are 300cals, I am wanting 500?
Thanks in advance
I don't know if this will help. I have just had my op to remove tumor from stomach/oesophageal junction. I was discharged with a prescription for Nutricia Fortisip. I am drinking 3 a day at 300 calories each. Not sure how long I will be needing them but am still loosing weight while getting used to my new normal eating regime.
Why don't you see if you can get some on prescription too.
I was prescribed fortisp by my dietician
I was advised to add dried milk powder Marvel to as many things as possible to increase calories. Are you in contact with a dietician, they give advice and send out drinks for you to try. The MacMillan nurse may also advise you. Don’t be shy of contacting theses people
Good luck x
As an update, I have chatted with the dietician and she has given me samples, she has written to my GP with my choice and asked them to prescribe. I have also been given some shots as top ups. My beast is right at the junction so obviously eating is stressful, now that I have these shakes 600cals it’s one less thing to contend with. Hopefully was chemo gets underway it will shrink and elevate this symptom. Although I am scared I am eager to start so roll on the 23rd..
thank you all for the support x
Hello Jen, you are little bit further down the line than me I think, I have had endoscopy and CT scan, hoping to meet the team next week. I was initially advised liquid diet but nurse said carry with soft food, which is as you say is a bit stressful. Could I asked a brief description of the diet you have been given and what are the shakes. Hope you don’t mind. Thanks
all the best