So it's been a bloody rollercoaster ride

Some of you in here know my story I was diagnosed with stage 4 osophagus cancer last September with the cancer also spreading to my lymthnodes. I wasn't given a very good prognosis and was pretty much told months to live. My reaction to chemo/herceptin was immense when it come to scan results in jan/Feb the treatment had decimated the cancer and we were all over the moon.

The plan then was for me to be on surveillance for 3 months just on herceptin with a hope to then operate if no cancer returned. It was a great 3 months where I could pretty much eat normally and felt human again. Sadly after the 3 months we found out the cancer had returned everywhere and spread more in the lymthnodes.

Not long after I got a chest infection and ended up in hospital. The cancer in my lymthnodes is annoyingly stopping my chest from getting rid of all of the phlegm. I ended up in hospital for 3 weeks fighting the infection and restarting a different type of chemo which has been the most brutal month of my life and one I didn't think I would live through at times.

The positive is I'm now home. I'm on day 2 after my 2nd cycle on the new regime and I feel so much better than I did at this part of the last cycle. Life is more complicated I'm on oxygen now all the time, but I'm getting stronger day by day. Apologies I haven't been as active on here the last month hit me hard and I didn't feel like sharing after doing so well at first. However, one thing I will say is keep your head up and keep fighting your individual battles it's not an easy journey, but there is always light at the end of the tunnel if you fight.

  • Oh Vinny I am so sorry you are having all those difficulties. You gave me so much hope when I was diagnosed and started my chemo which is going well so far. I am eating a sourdough muffin with cheese that I hadn’t been able to touch for months. I do hope this goes well for you. I’m glad you are feeling somewhat better. Hope this treatment will work and you will continue to improve! Keep positive you told me so I repeat - keep positive - and know that lots of us are rooting for you!

  • Proud of you mate for getting where you are now. It's about listening to your body, focusing on getting the right nutrition in you and your body will fight. The herceptin obviously wasn't working the magic it was the chemo. I believe the new drugs will also work their magic and I will move forward.

  • The new meds are great. 

  • I’m really sorry to hear about your recent experience. Your posts on here when I joined were really inspiring and really helped me when I was newly diagnosed and I admire your positivity. That fighting spirit and the new right meds will get you back on track I’m sure. All the best 

  • Hi Vinny. I am sorry to hear what you have gone through but you are a fighter and staying positive is so important. You helped me so much when I started my journey and i am so grateful for that. I feel that I have been through the wringer as well. No op for me as the cancer has spread and the tumour made a hole in my oesophagus. It led to a very bad infection on my lung which almost finished me off. But I am so much better now- walking between 2 and 5 miles everyday. I have had a stent fitted which makes eating easier but the diet is so monotonous! I am waiting for my next appointment with the oncologist to see if they can offer me any treatment. I’m trying to enjoy every day and keeping positive. Best wishes to you-you are an inspiration to so many people. 

  • Vinny

    Sorry to hear about your very bumpy ride recently, but very pleased to hear from you! I have been missing your posts and wondering how you are and worrying too, at the silence. Always so impressed by your fighting spirit. It has helped me and my hubby keep going and continue to overcome the ever-increasing hurdles.

    We are on Cycle 7 of Xelox and the going has got tough. My hubby got a fever which set him back and now his swallowing issues have come back. His oncologist is not convinced it is a regrowth of the tumour, but possibly candidiasis or some other aggravation. We have to have an assessment and scan on Monday to investigate. It's all uphill at the moment and there doesn't feel to be end in sight.

    You are very brave to go on to an even tougher chemo regime. You are amazing! Keep posting. We are all here for you, even when things are not so upbeat. Wishing you all the best on your continuing journey.

    M

  • I echo what everyone says on here Vinny, you have been a great source of encouragement to lots of people on this forum and I’m glad to hear you’re still strong and fighting this awful illness, nice to hear from you again 

  • I have no idea why, but all of a sudden I have a page full of unread post spanning a number of weeks. I am sorry for my delay in posting a response to you Vinny.  

    You have been and continue to be an inspiration to others here, and whether your journey is being good to you or throwing you a curve ball, it is great that you have been able to come back and continue sharing with us. I am sure I speak for others too when I say, everyone here is behind you, your missing presence on the forum was noticed and I for one am really please to see you back. 

    Keep moving positively forwards, - Sending you strength. 

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Hi Vinny, really sorry to hear you have been unwell but glad you are home feeling a little better. Did you have a cough with the cancer in lymph nodes that made you cough hard but felt like you didn't clear anything?

    My chap has finished his course of chemo but has this awful cough at the moment. He has started some steroids but been feeling really tired and lethargic this week which isn't like him Disappointed

    Wish you all the best, thinking of you

  • Just seen this vinny, sorry to here you’ve been struggling and your prognosis isn’t so good, new drugs next step, keep fighting the good fight. Everyone is behind you, it’s a bumpy ride this thing wBoxing glovecall oesophageal cancer, but your a fighter and I have every faith in you going forward mate. Onwards and upwards, all the best Haybag Boxing glove