Swallowing and coughing 3 years post op

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Hi all,

i haven’t posted anything or been on this forum for about 2 years now and I am just wondering if anyone has started having any difficulties eating 3 years post op?

I had my op to remove a 3cm tumour at bottom of Esophagus at stomach junction in June 2022 and had 2 rounds of mop up chemo and fortunately they removed it all with no spread to anywhere, and no cancer on lymph nodes.

had the usual difficulties eating afterwards and have built up over the past 3 years and I can eat a fair bit now (obviously not as much as before op).  I have found some things are now more difficult when swallowing and I find cold food easier to manage which has been the case post op.  I find I’m coughing a little bit now whenever I eat which is more of an involuntary cough (no phlegm or congestion).  This is a new thing for me and I’m wondering if anybody else has experienced this 3 years or so down the line?  I attend a monthly support group so will ask them when I see them too but just wanted to ask as many people as possible.

Thankfully never needed a stretch following surgery and am wondering if I may need one now as it does feel uncomfortable on the chest area a lot of the time recently when eating? I’ve googled this and it said the stretching would normally be more likely soon after the op but not impossible to need one 3 years down the line.  I’m maintaining my weight so no concerns there.

Thank you for reading this 

  • I also meant to add that I have been getting more heartburn lately too so am trying to adjust what I eat and drink!! 

  • Hi Browndog.  If you are still under your surgical/clinical team at whichever hospital you had your procedure at, I would recommend that you seek their advice and insist on a scan to establish that everything is as it should be.  I have this week sadly lost my husband who had a successful 3 stage oesphagectomy in September 22, 4 rounds of mop up FLOT treatment, and given the all clear in February 23.  There are parralels in your described symptoms and feel you need to insit on them checking; our experience solely sadly didn't do enough. I don't wish to throw the fear of god at you but cannot overemphasise the neccesary importance - especially if you already feel the concern to post on here. 

  • Hi always yellow, - thank you for your prompt reply and I’m so sorry to hear that your husband passed away last week from this awful illness!  Had his cancer spread to other organs do you mind me asking?  Awful that you both had to go through it all again so quickly after the first diagnosis!  I’ve just had my last yearly phone call check so it’d be Sod’s Law if I’ve got a reoccurrence now but I will ring up and ask if I can have a scan as it’s been about 2 years since my last scan that I asked for.   I’m not regurgitating anything up yet so that’s a good thing!  There’s no pain when swallowing like before the op but something doesn’t feel quite right.

    thank you

  • Hi again.  Unfortunately he/we were unaware of the cancer returning until the very last moment.  He had not been eating properly for approx. 6 weeks which he felt and GP diagnosed was down to stress and exhaustion related to work. He was very similar to yourself, he only wanted soft, sweet foods, ie., ice cream, yogurt, jelly etc.  He, or so we thought, had a mental block with reference to swallowing which we are now assuming is linked.  On admission to hospital on Sunday just gone, it was confirmed that it was present in other organs.  Sadly he declined very quickly.  At every outpatient appointment since surgery, we both voiced our concern that a scan was not undertaken to check for reoccurence and we were regularly advised that the medical thought process is that once removed, the likelihood of it returning was unlikely, not impossible, but unlikely.  We strongly advise that from our own experience, you seek medical advice as soon as possible especially as you feel that something does not feel right, always advocate for yourself.  

  • Please let me know how you get on